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  • Image of waterlott

  • Recent Activity

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  • Journal

    • Journal Entry for December 30, 2007

      Mood December 30, 2007 12:19pm

      Well, we got through christmas - its very strange when you loose someone close to you so near to christmas, its happened to us before, when my mum …

    • Journal Entry for December 2, 2007

      Mood December 2, 2007 2:28pm

      Its Sunday, and its rained all day

       

      We are all in such a sense of shock - on 5th November my mum in law was with us - in Augustshe came on …

    • Journal Entry for December 1, 2007

      Mood December 1, 2007 7:16am

      30th November, 2007

       

      My dear mum in law died on 28th November, 2007.  Almost to the die that my own mum died on 28th November, …

    • Journal Entry for November 26, 2007

      Mood November 26, 2007 4:03pm

      26th November, 2007

       

      Sometimes things just get harder - well, if someone has a plan - I wish I knew what it was now!

       

      I havent been on line …

    • Journal Entry for November 6, 2007

      Mood November 6, 2007 4:36pm

      6th November.

       

      Well, hearing in other ear is up and down - only real way to descibe it - and its was the specialist says will happen.  My …

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  • Hugbook

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    • Good Luck

      From antond March 17

      Happy St. Patricks day. Hope you have a great day

    • Hug

      From seadawn March 13

      Just for you

    • Good Luck

      From REDWV67 March 11

      HI THERE,I SENT A FRIENDS INVITE TO YA.I'M GOING TO THE DR. TODAY FOR MY MENIERES DISEASE THIS WEEKEND I LOST MORE OF MY HEARING IN MY RIGHT EAR. GOOD LUCK TO YA.

    • I’m With You

      From krsmom January 19

      You will adjust and go on to live a good life. Live your life in spite of this disease and don't let it define you.

    • Hug

      From seadawn January 4

      'cause I felt like it and 'cause you deserve a far away hug. Take care

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  • Support Groups

    • Close Hearing Loss & Deafness
      Type: Sensorineural (Severe)

      October 2006 I went deaf in one ear. Several visits to the doctors and told to 'inhale' or 'wait and see' the pressure and deafness became worse and worse, resulting in severe dizziness which made me sick and bed bound. Finally was sent to a specialist who thinks it might be meniures desease (is that how you spell it). Anyway, the hearing loss has got worse and worse,I am now deaf one side (there I have written it).

    • Close Tinnitus

      Hi, I lost my hearing last October, 2007, suddenly - I suddenly developed Menieres Desease - apparently I have the genes from my Mum. At first it was just the deafness - I had steroid injections into the ear - then it started....I never realised what tinitus was and its driving me mad. It gets louder and louder, I have to imagine I am in the jungle (dont laugh) just to get to sleep - it works for me - sometimes. I JUST WANT IT TO GO AWAY. I take Serc tablets

    • Open Meniere's Disease

      October 2006 suddenly went deaf if left ear. Doctors told me to inhale steam!! Then the vertigo, sickness and the tinitus started with avengance. Then!!!!!my doctor sent me to a specialist - great ! He said I had menieres desease and for three weeks injected steriods directly into the ear - not nice and did nothing. I take SErc X3, water tablets - wear a hearing aid, but it doesnt help really apart from locating sound - I am a teacher so I needed that. My Mum had menieres - so its hereditary

      Treatments

      Low Salt Diet Working / Worked
      Not sure - I love salt and seems to crave it more now as I try to elimiate it from the diet.
      Methotrexate Working / Worked
      12th October, 2007. Saw an immuniologist yesterday - they have looked at my 'bloods' and am putting me on this to see if it can save the hearing in my 'good' ear. still on 50 mg of steriods too - but reducing it to 40 mg for next week. First dose of methotrexate is low only 2.5 x 3 - then after blood tests next friday they will decide on the dose. Also three days after each dose I have to take folic acid.
    • Open Thyroid Cancer
      Type: Anaplastic Carcinoma

      Help - I am a DS member usually focused just on me - I am deaf! But this is about my mother in law - in September she had a sore throat/felt like a lump. Doctor sent her to hospital, specialist said it was nothing. She got worse, went back to doctor who sent her for a scan then a biopsey. Last weekend she was here with us - Tuesday she went for more tests - was admitted to hospital and now just days later they have diagnosed Anaplastic Thyroid Cancer - have said its inoperable.

      Treatments

      Radiotherapy Working / Worked
      hasnt started treatment yet OCT 2007
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