Hello all... Went to my first MS …
Hello all... Went to my first MS support group meeting on Monday. It was pretty interesting. The guest speaker is a …
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Hello to all,
It's been awhile since my last entry. Hope everyone is doing well. I've missed the interactions I've had with several of you. I hope to resume.
Had another round of MRI's last week and I have not heard the results yet. Hoping for more good new, though. Overall, I am feeling pretty well and my Specialist will not have another round of Novantrone administered unless she absolutely has to. As long as moods stay regulated and the results of MRI show shrinkage or maintaining the same as before.
Life continues to progress. Husband and I continue counseling, which I believe has helped in some ways. In others, I don't think anything gets through to him.
Case in point: He mentioned that he had accumulated some personal days at work so I suggested that I would like to take a whole day off, just the two of us, while the kids are at school, and just do some "us" stuff. He agreed and said that sounded like a wonderful idea. We had discussed it and decided that last Tuesday, after my early morning MRI that we would goout for breakfast then, whatever, until time to pick up kids from school. We would have had at least 6 hours to ourselves. Well, Tuesday didn't work out because something or other on his part. Tuesday night, when he got home from work, he apologized for the day not happening and said we could schedule for Friday. I accepted and was anxiously awaiting the day. Unfortunately, he chose to go to work and NOT spend the day with me as he swore he would. Now I am the one who is the problem because I am not being compassionate to him. Interesting how I do EVERYTHING for my family, ALL the time. I always put myself last and don't usually complain. But I have a very low tolerance for excuses and explainations of people who say one thing and do another, especially when there isn't a good reason for it, like an emergency or something just lack of desire and wanting to.
Anyway, other than that we are doing better.
Well, looks like the heat of spring and summer are officially on it's way. We have 90 degree weather for the last 2 days. Our house has absolutely no air conditioning, loooonnnngggg story, but I swear, I am beginning to really wilt in this humidity. I have checked into acquiring some of the cooling tools that I have heard mentioned, but I have not decided on which to get yet. I will have to make that decision soon, though.
Anyway, looks like I need to get going, you know, being a mom now. Dinner awaits....
Hugs to all, Sirena
It's been awhile since my last entry. Hope everyone is doing well. I've missed the interactions I've had with several of you. I hope to resume.
Had another round of MRI's last week and I have not heard the results yet. Hoping for more good new, though. Overall, I am feeling pretty well and my Specialist will not have another round of Novantrone administered unless she absolutely has to. As long as moods stay regulated and the results of MRI show shrinkage or maintaining the same as before.
Life continues to progress. Husband and I continue counseling, which I believe has helped in some ways. In others, I don't think anything gets through to him.
Case in point: He mentioned that he had accumulated some personal days at work so I suggested that I would like to take a whole day off, just the two of us, while the kids are at school, and just do some "us" stuff. He agreed and said that sounded like a wonderful idea. We had discussed it and decided that last Tuesday, after my early morning MRI that we would goout for breakfast then, whatever, until time to pick up kids from school. We would have had at least 6 hours to ourselves. Well, Tuesday didn't work out because something or other on his part. Tuesday night, when he got home from work, he apologized for the day not happening and said we could schedule for Friday. I accepted and was anxiously awaiting the day. Unfortunately, he chose to go to work and NOT spend the day with me as he swore he would. Now I am the one who is the problem because I am not being compassionate to him. Interesting how I do EVERYTHING for my family, ALL the time. I always put myself last and don't usually complain. But I have a very low tolerance for excuses and explainations of people who say one thing and do another, especially when there isn't a good reason for it, like an emergency or something just lack of desire and wanting to.
Anyway, other than that we are doing better.
Well, looks like the heat of spring and summer are officially on it's way. We have 90 degree weather for the last 2 days. Our house has absolutely no air conditioning, loooonnnngggg story, but I swear, I am beginning to really wilt in this humidity. I have checked into acquiring some of the cooling tools that I have heard mentioned, but I have not decided on which to get yet. I will have to make that decision soon, though.
Anyway, looks like I need to get going, you know, being a mom now. Dinner awaits....
Hugs to all, Sirena
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hang in there hun, always thinkin of you. hope u and hubby get that time soon..
lorna