is feeling OK
On vacation.
Stay-at-home mother of 4. Retired teacher.
Hmmmm. Perhaps I will add something here. I love quilting, making music, flute, guitar and I sing in the choir. I enjoy writing, am 165 pages into a book I am writing. But sadly, I am not really any good at any of this.
Marah replied to angel67stang’s request for advice about what kind of docter in the Neurofibromatosis support group 7:39pm
CTF website has a list of docs who know about NF. Sadly, none in Columbus, but maybe you will get lucky…
Marah replied to lonliedove’s discussion post A Mass in the Neurofibromatosis support group 11:03pm
Hope all the news is good. So scarey to have a large mass, even if it is benign. Thoughts and prayers…
Marah gave SisterMagdalene a Hug 11:02pm
Yes I have had the experience of the new ones itching. Hope it gets better. Hugs and prayers to you.…
Marah wrote a journal entry: Journal Entry for July 4, 2008 3:46pm
So have time for one more journal. Cold and rainy today. Hard to believe it is the 4th. So just staying…
Marah changed their mood to OK 3:46pm
Marah updated their status 5:54pm
On vacation.…
Marah wrote a journal entry: Journal Entry for July 3, 2008 1:32pm
Did my weight training this morning, then have been busy since. If anyone cares, I will be gone from…
Marah replied to benzar’s discussion post I Feel horrible in the Neurofibromatosis support group 6:40am
Part of the problem with NF is that it is different for each person. Some of us only get bumps on the…
Marah replied to Mog2’s discussion post Cholesterol in the Food Addiction support group 7:29pm
Exercise. I lowered mine 60 points, of course I was overweight from the years of binging. It started…
Marah gave benzar a Hug 7:27pm
Random hugs!!!!…
July 4, 2008 3:46pm
So have time for one more journal. Cold and rainy today. Hard to believe it is the 4th. So just staying in not doing much. Well I …
July 3, 2008 1:32pm
Did my weight training this morning, then have been busy since. If anyone cares, I will be gone from Saturday to Saturday. So won't …
July 2, 2008 12:16pm
Beautiful day today. Went for a 3 mile run this morning, cleaned bathrooms. Working on laundry and will vacume after lunch. Nothing …
July 1, 2008 12:02pm
Really beautiful day, almost makes up for yesterday. Almost makes up for waking up to toilet paper all over my garden. I guess we have …
June 30, 2008 11:02am
Well, anniversary weekend is over. I think the problem is, after last year when we were actually able to get away for a romantic weekend, …
Hope you had a marvelous vacation!
Hope that things are going well for you! Hey, by the way, how is the book going?
HUGS
Thank you for your friendship during this difficult time. I appreciate all the support and love you've shown me. I am very thankful to God for continued love and prayers from those he has guided to pray for me...and that includes you!!! Love, Diane
Here's big hug and squeeze for you. Enjoy your day and vacation!
I was diagnosed with NF1 after the birth of my second child. I aways had cafe ole spots and freckles, but did not develope tumors until pregnant with my second child. My two middle children have the gene, oldest and youngest escaped. I am the first known generation in my family to carry the gene. I now have many small tumors on my face, neck and torso.
I was diagnosed with asthma about 27 years ago. I have tried many things, most have not worked or had bad side effects.
I am 48 years old with four children. I have high blood pressure and high cholseterol. I am hoping to avoid meds. Lost 55 pounds altogether, ran a marathon, gained 3 back, but am doing okay.
I am a food addict. When people were not there for me, food was. When I was scared, or bored, or lonely, or tired, or angry, or sad, or well you name it. Food is my drug of choice.
I have an 18 year old son who suffers from dyslexia and speech problems due to NF, and a 14 year old daughter who also has NF and ADHD, but is also gifted academically.
My baby is 11 years old. I am really trying hard to not baby her too much.
I have been a lacto/ovo vegetarian for 30 years.
I am 47 years old, but when I am around my dad I am 13 again begging for his approval that I know I will never get. I can't accept that I am worth anything.
My youngest daughter was born with a cleft in her soft palate. This was repaired by surgery and she is now problem free and a beautiful young lady.
