Support Group MEETINGS
September 2, 2008 9:54am
Our Upstate NY Amyloidosis Support Group has the Honor to have as our Guest Speaker- Dr. Martha Skinner, Expert and former Director of the …
thumbelina’s Profile
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thumbelina
is feeling OK
About Me
Worked as an RN on a med/surg floor at a local hospitalfor 19 years. Married for 32 years to a Good Man. I'm very active with the Amyloidosis Support Group. Iam co-facilitator of the Upstate NY Group.
Interests
Enjoy gardening, baking and estate sales and Live Blues Music Favorites artists: Charlie Musslewhite, Taj Mahal and Etta James
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Recent Activity
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Journal
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SUPPORT GROUP MEETINGS
June 21, 2008 9:47am
Amyloidosis Support Groups (ASG) hold meetings throughout the US. Our Website is: www.amyloidosissupport.com. There you will find info on …
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Support is growing at the Amyloidosis Support Group Meetings
March 17, 2008 5:14pm
March 17th and our next Upstate NY support group meeting is drawing near! April 26th we will meet again with a prominent guest …
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Journal Entry for October 28, 2007
October 28, 2007 10:52pm
Thank you for this opportunity to raise awareness and support for a favorite not for profit organization. I nominate the "AMYLOIDOSIS …
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Journal Entry for September 14, 2007
September 14, 2007 12:25am
I'm recovering slowly but shurely from the fall last month. At least I'm not afraid to sneeze anymore....sure sign of ribs healing : …
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Enjoyed reading your profile...I will have to work on mine...we have much in common, it seems. I too like to cook, garden, go to estate sales, bake when there is time. Music wise, I like soft rock, easy listening jazz.. I taught elementary school for 30 years...all in the same school. My favorite years there were when I taught kindergarten, kdg-to-1st transition, and first grades. My husband and I have been together since Dec. 1982. We have two homes, both of which I love, and a motorhome, which I enjoy traveling in. Our primary home is in Huntington Woods, MI (this house is in what was recently declared a historical district...it was built in 1939) and our secondary home is in Traverse City, MI. (We built this house on an inland lake, in the woods, and moved into it in July, 1985). Regards, Susie
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Flower
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Flower
Thank-You for the information on the support group. I haven't been on this site for awhile and decided to give it another try. Your message encouraged me. Teach
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Hug
Thanks for the info.
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Photos
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Support Groups
Close Amyloidosis
I am caregiver to my husband who has primary amyloidosis.
Treatments
- Bone Marrow Transplant Somewhat Helpful
- sct provides hope but the procedure is rough. Effects of high dose chemo take months to subside.
Close Kidney Stones
HI, I'm new to this group. Have kidney stones ,calcium oxylate 2x5mm size. Passed a smaller one on my own. Urologist planning to go into the ureter and catch this one and if he can't get it he will laser it from within. Was given Flomax to try before the surgery date. I'd like some yea's and nays from anyone experienced with this medication. This procedure has me nervous too. Thanks, MaryAnn
Treatments
- Avoid Certain Foods / Chemicals Working / Worked
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Snapshot
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