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  • Image of livinwithlupus

    About Me

    my husband is deathly ill will copd and emphysema, the dr said it was advanced, have no idea what that means so if someone knows please tell me...

    Interests

    taking care of my family

  • Recent Activity

    Sunday

    October 2

    September 28

    • livinwithlupus wrote a journal entry: Hello 11:54am

      I No its been awhile sense i wrote but have been real busy working and trying to take care of things…  

    September 22

  • Journal

    • Hello

      Mood September 28, 2008 11:54am

      I No its been awhile sense i wrote but have been real busy working and trying to take care of things around here. switched jobs so hopefully in 60 …

    • Bad Day

      Mood May 13, 2008 10:08am

      Iam not real sure what is going on but for the past 2 days my stomach has been hurting. like real sharp stabbing pains, almost brings me to my knees. …
    • Journal Entry for February 29, 2008

      Mood February 29, 2008 5:56pm

      today has been ok, my husband is doing good our daughter went to gmas for the weekend and we have the house to ourself.YAHHH. Im jus curious does …

    • Journal Entry for February 25, 2008

      Mood February 25, 2008 9:27pm

      Today has been a really crappy day, i hurt everywhere, espically my bak, cant hardly walk. not to mention my husband is sik and i cant get him to go …

    • Journal Entry for February 24, 2008

      Mood February 24, 2008 3:44pm

      We are all doing ok have moved bak to wichita ks where my husband is from. his kids and grand kids live here so we moved back. he is alot more …

    Read Journal

  • Hugbook

    Give livinwithlupus a hug

    • Hug

      From schnarfle October 1

      Oct is National Breast Cancer Awareness Month! Please remember to do your monthly checks & remind your friends & loved ones to do the same!

    • Hug

      From Fredsniece September 26

      Just a hug to let you know I care!

    • Hug

      From KathyVa August 24

      sounds like a build up of fluid go to the doctor.might need lasix to take it off.call pulmo doctor

    • High Five

      From wendy35 August 9

    • Hug

      From sassyme July 19

      I hope the days are getting easier for you and your family. Your in my thoughts and prayers. God bless

    Read Hugbook

  • Support Groups

    • Close Lupus

      i was diagnosed with lupus about a week ago, i have severe pain and knumbness to fingers,sholders,legs and feet,fatigue,memory loss, havent been to a rhumie yet but waiting on appointment, also a positive ana test

      Treatments

      Prednisone Working / Worked
      helps ease some pain but not alot
      Hydrocodone Working / Worked
      helps ease the pain enough to sleep
    • Close COPD & Emphysema

      My husband has copd and we are currently going threw a flare, i came here for the lupus group and thought id get info for the both of us.

      Treatments

      Albuterol Working / Worked
      works somewhat for him
      Atrovent Working / Worked
      works when combined with albuterol
      Spiriva Not Working
      Advair Working / Worked
      works but could not afford it
    • Open Sleep Apnea

      my husband wakes up a few times a night choking

    • Open Lung Cancer

      my husbands pulmonary dr walked n and told us that he had lung cancer based on pulmonary knodules on a ct scan

    • Open Fibromyalgia

      i have been fighting this dieaase 4 as long as i can remember and nothing i mean nothing helps. the more i work the more it hurts.

    • Open ADHD / ADD

      my daughter was diagnosed with adhd when she was 3 she is now 8 and things just seem to be getting worse

      Treatments

      Adderall Somewhat Helpful
      Ritalin Not Working
      mabey her loopy
      Strattera Not Working
      made her hullicinate
      Vyvanse Somewhat Helpful
      iam not real sure it calms her down but not for very long
  • Groups

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