Today is Wednesday, I wasn't …
Today is Wednesday, I wasn't on yesterday because my honey was sick...he was real bad...when he came home Monday …
We've had a horrible time since yesterday. Had to spend Father's Day in the ER with Jordan. His fever was over 104. Called the pediatritian, who said to get to the ER. The thing with Jordan and the fever is that, since he has Ectodermal Dysplasia, he cannot cool himself off. This is a huge deal. We could not make the doctor at the hospital understand that. It was majorly frustrating. He kept telling me, "Its just a virus". I kept telling him, "I understand that. That's not why I'm worried. He has Ectodermal Dysplasia and cannot cool himself off." He sent us home. I know ED is extremely rare, but come on. Even when I told him what was going on, he still thought I was being a paranoid freak. I am pretty sure that the nurse thought we should stay until the fever broke. She even told us that if it didn't come down, to take him to the ER at Grady-- a hospital that is over an hour away. His fever finally broke, and he's all better now. I'll write about today's drama later on.
Today is Wednesday, I wasn't on yesterday because my honey was sick...he was real bad...when he came home Monday …
Hi everyone!! I just noticed that I haven't written a journal for around 3 weeks. I have to apologize, I have just …
My son Shaun had a major "bipolar" day today. He was violent, weepy, and angry. I cannot figure out why his meds seem …
Hiya.Not a lot of fun in your neck of the woods at the moment but great that Jordan os back on track again. Little wonder you are having trouble sleeping...must be difficult for you to turn yourself off at night. Gotta wonder about Doctors sometimes. I also have a rare disorder. My Doctor told me I probably know more about it than anyone.......does that mean him as well...lol. He is a very good Doctor however and I have a lot of faith in my medical team
kaylish
Lol-- Jordan's docs all have told me that I will have to be an "educator" to most doctors. Kind of scary when you think about it!
ESmith