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  • Image of HopefulMary

    About Me

    I have been diagnosed with fibro for about 4 years. I am trying to take a wholistic approach. I have also just been diagnosed with bipolar disorder which has made my life rather 'interesting'.

    Interests

    Knitting, crocheting, reading, roleplaying games (pencil and paper, NOT computer games, those aren't roleplaying games!), educating myself and others about fibromyalgia and depression, music, movies, NPR, crossword puzzles, music, meditation, prayer, learning about religion (I have just started attending church after calling myself an atheist all my life. I took the leap of faith and decided to believe in God. However, I am also open minded and am intersted in learning about all kinds of faiths and points of view about religion.)

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Journal Entry for December 16, 2007

      Mood December 16, 2007 2:19am

      I am not feeling particularly bad, but just a little scared. I was just diagnosed with rapid cycling bipolar II which makes a lot of sense with my …

    • Journal Entry for December 9, 2007

      Mood December 9, 2007 1:26pm

      Wow, it's been awhile. I apoogize to all who have written to me and to whom I have not written back.  The past 4 or 5 months seem like a …

    • Journal Entry for July 11, 2007

      Mood July 11, 2007 11:44pm

      I'm not dead but I felt like I was dying....I just am not starting to pull myself out of one of the worst depressions I have been in for a long …

    • Journal Entry for May 17, 2007

      Mood May 17, 2007 10:40pm

      I have had some kind of flu bug the last several days--fever, aches and pains, throwing up. If it weren't for the fever I'd just assume I was in a …
    • Journal Entry for May 10, 2007

      Mood May 10, 2007 1:30am

      I have had one of the most pain free days I have had in a long while. This is pretty amazing considering I didn't sleep too well last night. I …

    Read Journal

  • Hugbook

    Give HopefulMary a hug

    • Hug

      From Idahomom March 13

      I hope you are having a Great Day. LYL Tonya

    • Hug

      From Idahomom January 15

      Just a BIG SQUISHY HUG. LYL Tonya

    • Cheers

      From DarkenedSoul January 1

      10! 9! 8! 7! 6! 5! 4! 3! 2! 1! HAPPY NEW YEARS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! We made it through another one. May only happiness and good follow you through this new year.

    • Hug

      From Bella007 December 31, 2007

      hi im lyndsey i havfe seizures too i hope everythings going well for you, we can talk sometime if you want!:)

    • Hug

      From DarkenedSoul December 29, 2007

      *hugs very very tight* hi my friend. hoping you had a wonderful holiday. Love to you, here for you. x Elizabeth

    Read Hugbook

  • Support Groups

    • Close Fibromyalgia

      Treatments

      Darvon Not Working
      It didn't really touch my pain.
      Oxycodone Working / Worked
      I just started on this about a week ago but it really seems to be helping. I am taking 10 mg twice a day. I am taking Oxycontin, the long acting version.
      Acupuncture Somewhat Helpful
      Helps for a little bit but not for very long
      Avoid Certain Foods / Chemicals Working / Worked
      I no longer touch alcohol. I never drank much, but I had one beer a few weeks ago and it made me feel like crud for two days. My fibro body just doesn't like it.
      Biofeedback Working / Worked
      This has really helped with controlling pain and depression, but most of all anxiety.
      Chiropractic Adjustment Not Working
      It made my pain worse.
      Couples Counseling Working / Worked
      It helps my husband understand my pain.
      Crying Working / Worked
      Sometimes I just allow myself to feel sorry for myself and I have a good cry. It seems to help.
      Cyclobenzaprine Not Working
      Just didn't phase it
      Cymbalta Not Working
      Sadly...this one pooped out on my. I am no longer taking it.' ________________________ Best anti-depressant I have ever used. No weight gain, no major side effects, and the tingling and burning I used to get in my feet is gone.
      Elavil Not Working
      Made me gain weight; ended up inducing serotonin syndrome and didn't help my sleep all that much
      Hydrocodone Somewhat Helpful
      It helped my pain but gave me terrible mood swings, which were worse than the pain.
      Laughter Working / Worked
      I love the Simpsons and I use the videos as therapy sometimes. Laughing really does help my pain.
      Massage Working / Worked
      Gentle myofascial massage does help
      Neurontin Not Working
      Didn't work for my pain and even a small dose made me really dizzy and gave me double vision.
      Patience Somewhat Helpful
      It's hard, but I try to tell myself that everything can't be fixed overnight!
      Physical Exercise Working / Worked
      It's hard to do, but I try to walk a little bit every day. It does make me feel better.
      Physical Therapy Working / Worked
      I see a therapist who specializes in fibro. She has really helped me.
      Prayer Working / Worked
      Ultram Somewhat Helpful
      Caused restless legs. Only helped my pain a bit. Also caused HORRIBLE withdrawal symptoms. It definitely causes dependence no matter what the doctors say.
    • Close ADHD / ADD

      I was just diagnosed as an adult. It sure makes a lot of stuff from my childhood make sense though

      Treatments

      Ritalin Working / Worked
      Seems to be working well, but it doesn't last long enough. My P-doc switched me to the long acting a few days ago and that seems to work better.
      Cognitive Behavioral Therapy Working / Worked
      Couples Counseling Working / Worked
    • Open Epilepsy & Seizures

      I am joining this community because my husband (age 44) has had juvenile myoclonic epilepsy all his life and I'd like to be able to educate myself about it.

    • Open Post-Traumatic Stress Disorder

      I was sexually abused as a child by a female babysitter and molested at a swimming pool by a stranger when I was 10. These are incidences that I have only recently started to remember.

      Treatments

      Art Somewhat Helpful
      Biofeedback Working / Worked
      This helps me calm down when I have a flashback or am really anxious.
      Cognitive Behavioral Therapy Working / Worked
      This is working because I have a wonderful therapist whom I trust.
      Effexor Not Working
      made me too jittery
      EMDR Considering
      Physical Exercise Working / Worked
      Walking helps my anxiety. My therapist told me your body can't stay in a state of anxiety while moving, and it seems to be true!
      Writing Somewhat Helpful
      Sometimes writing about my feelings helps. I also have found it helps to write letters to my abusers and then burn them. I have done this several times.
      Xanax Working / Worked
      Helps when I have panic attacks or flashbacks.
    • Open Adoption

      I am a birthmother. My daughter is now 14 years old. I hope to be reunited with her some day.

      Treatments

      Crying Working / Worked
      Every year on her birthday I have to take the day off work.
      Prayer Working / Worked
      Time Somewhat Helpful
      The pain does ease as time goes on but anniversaries are always tough.
    • Open Bipolar Disorder

      I was just diagnosed with bipolar II rapid cycling...The psych nurse practitioner really knew what she was doing and described exactly to me what I was feeling. It was a relief but I am also scared to death about it. I just want to feel better.

      Treatments

      Abilify Not Working
      They tried it and I had to go off immediately due to side effects. Made me feel extremely anxious. It's not good when you need to take a benzo just to calm down from another medication...
      Ativan Working / Worked
      I use it when my moods and panic from PTSD get too out of hand and it works great.
      Lamictal Too Soon to Tell
      I hope so much that this will work for me. They have to taper it up so slowly though so I am just barely at 200mg. Doc wants to get me up to 400 mg and see what happens.
  • Friends

  • Snapshot

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