Vampires and counts
July 11, 2008 9:52pm
Went for my phlebotomy today. I get my CBC and Ferritin checked before it. My white count was dwn to 1.6. I knew that chemo does that I …
Mike19054’s Profile
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About Me
Dx'd in 1993. I have 2 sons, 11 and 8. I'm lucky that they understand that I can't run around with them, but I do what I can. Currently using Rebif after 6 years of Betaseron, 4 years of Copaxone. and now 3 years of Rebif. Was dx'd one year after getting married. She was in denial for nearly 9 years and that did it in. I have found a lady who knows my condition and limitations. Dx'd with Hemochromatosis in 2006. I'm originally from Jackson, NJ. Still a Piney at heart. Look forward to hearing from other folks in the same boat.
Interests
I love camping and spending time with my sons. NASCAR, wasting time on the computer, camping, fishing.Did I say camping??!!
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Recent Activity
Wednesday
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Mike19054 gave olelady a Hug 10:05pm
They are doing well. They really would have enjoyed these, as long as we weren't in a tent!!!…
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Mike19054 gave AngieS a Hug 10:03pm
Sorry Brett..enough is enough!!!…
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Mike19054 gave Jewell2u a Hug 9:58pm
Hope you did ok with today's storms. At least it has cooled off some.…
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Mike19054 gave olelady a Hug 8:50pm
Hope you're doing ok with these storms today.…
Tuesday
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Journal
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Journal Entry for July 3, 2008
July 3, 2008 8:35am
Today is Novantrone day so I'll be taking a break for a few days. Have a great 4th.
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Journal Entry for June 30, 2008
June 30, 2008 9:34pm
Got a new computer today. Nice Dell laptop. I need to migrate over a lot of junk. It has a camera too. Maybe I'll get …
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Journal Entry for June 20, 2008
June 20, 2008 10:16pm
May have done my last Rebif shot tonight. i really feel that it hasn't made a difference and I have better things to do with the …
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Hugbook
Hug
I hope everything is going well for you...Take Care and Have a GREAT WEEKEND!!!!!!!!
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Hug
Hi thank you, it looks like another day of rain and thunderstorms. Oh well, i'll get some indoor things done. I hope all is well with you Mike. Thanks for the hug. Kathie
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Hug
Kids! What can I say! I see my nieces' boys and it brings back memories, Mine are 30 and 28! I wont be camping with them any time soon!
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High Five
I'm just glad the storms are sounding the end to the heat wave! How are the boys?
Hug
Have a great day! Big (((HUGS)))!!!
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Photos
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Support Groups
Close Multiple Sclerosis (MS)
Type: Seconday Progressive MSDiagnosed 10/93. My first symptoms were in 2/93 when my right leg became numb and weak. 7/03 I had optic neuritis. I was diagnosed that October. Started on Betaseron in 1994. Copaxone in 2000 then Rebif in 2005. I am on disability because of fatigue and cognitive problems.
Treatments
- Ambien Working / Worked
- Works like a DREAM!! ha
- Baclofen Somewhat Helpful
- Betaseron Working / Worked
- Lost it's effectinvess after6 years.
- Celexa Working / Worked
- Need a generic alternative to Lexapro.
- Copaxone Working / Worked
- Lost it's effectiveness after 4 years.
- Exelon Not Working
- No noticeable difference noted.
- Lexapro Working / Worked
- Paxil Somewhat Helpful
- Worked well made me sweat an awful lot.
- Prednisone Not Working
- Prednisone gives me very bad mood swings. Always went cold turkey after the Solumedrol.
- Rebif Working / Worked
- After 4 years, it seems to be holding it's own.
- Solumedrol Somewhat Helpful
- Worked. Gave me pains behind my knees and a lot of energy. Have had that about 10 times.
- Zoloft Somewhat Helpful
- Started to become more depressed after a while.
Close Hemochromatosis
Diagnosed 9/06. Had ferritin checked after having discomfort in the right upper quadrant. After 6-7 phlebotomies my ferritin went from 660 to 25. Went as low as 15 but is inching up again.
Treatments
- Phlebotomy Working / Worked
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Snapshot
Recently …
- 7 hugs given
- 10 hugs received
- 3 journal comments
