MeMe1’s Profile
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MeMe1
is feeling OK
About Me
I was diagnosed with precancerous lesions of the vulva July 2004. I had a simple vulvectomy. April 2005 it returned, I had a partial vulvectomy. In May 2006 a large growth was found within my vagina and I had 8 weeks of radiation to shrink the tumor. The radiation was painful and caused diarrhea. In Sept. 2006 the tumor was still there and I was scheduled for more surgery. I wanted to wait until after the holidays so I could enjoy Thanksgiving thru New Years without being in bed. cont.
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Hugbook
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Hope you're doing well. Thanks for the hug!
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heres a big hug meme1 as I am starting on this journey also with a diagnosis of Vulvar carcinoma in situ, had area removed and must see the doc every six months
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So glad to have others join me here, I have been dealing with vulvar cancer since 1997 I belong to a much bigger group (online support group) here is a link if you are interested womenconqueringcancer@yahoogroups.com and gyn-gals@yahoogroups.com Don't get me wrong, im not here to advertise, just letting you know there is support out there Big Big hugs to you Debbie
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i hope things are good for u. i took care of my 69 yr old aunt who let it go forever and nothing could be done. i had never even heard of it until then.
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Support Groups
Close Vulvar Cancer
I had a radical vulvectomy in Jan. 07 with skin graft - this was the worst surgery, yet. The cancer is back and the doctor says it would be best to do nothing. I have increased pain medicine and am using Efudex to control some of the topical growths.
Treatments
- Radiotherapy Not Working
- External Beam Radiation was very uncomfortable and I felt really bad. However, after radiation stopped I felt better within 10-14 days.
- 5-FU Too Soon to Tell
- I have just started using Efudex 1 week ago and the area where its applied has started looking brown and grayish and more sensitive than before.
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Friends
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