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  • Image of grammylori

    About Me

    I am an RN., married with 5kids, 3grandkids, live in the East Central Illinois countryside. Love my family with a passion and am fighting this lyme disease so I have some quality of life to spend with them.

    Interests

    alternative healing, new age spirituality. primitive crafts, cooking, hanging out with family and friends, internet

  • Recent Activity

    Today

    Sunday

    Friday

  • Journal

    • not a journal writer

      Mood October 3, 2008 9:41am

        I am not a dilgent journal keeper but I knew that when I started.  I had hoped to see trends in symptoms but so far nothing concrete …
    • so much to do so little strength to do it

      Mood September 28, 2008 11:15am

       feeling really guilty right now because my husband has to do so many of the things i used to be able to do on my own. It really sucks. ONe more …

    • Journal Entry for September 26, 2008

      Mood September 26, 2008 9:21am

      so far so good today. a minimum of pain, just had a few hives when i woke up. am going in to work this am instead of having to struggle to get there …
    • day by day

      Mood September 25, 2008 11:28am

       

      woke up today with stabbing headache, multiple upper body pains, low back pain as usual every morning. called in to work then began having a …

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  • Hugbook

    Give grammylori a hug

    • I’m With You

      From scarlett5202 November 6

      Thanks, Lori - I never imagined how it would feel to see my baby with his own baby - Innes has already stolen my heart xx

    • Hug

      From ShariA October 22

      Hi Lori, I have been having my own issues, as you know but it's not too late to give you a hug and tell you everything is going to be alright. Far be it for me to say that but We Will succeed. You keep your chin up and you ARE in my prayers. Shari

    • Prayer

      From moreel October 22

      You worded your prayer request very eloquently, and that is what I will pray for you today :)

    • Hug

      From beccachow October 21

      I hated to be a downer, i try to be sort of up, but I knew you guys would understand. For Gosh's sake, of all the times to find a LLMD...

    • I’m With You

      From UechiWoman October 16

      Hi Lori. I've thought of your post a few times, about wanting to be able to do more with your kids. How old are they? I had read an article on a fibromyalgia flyer about how to spend time with kids, when energy and pain are a problem. I'll see if I can dig it up, but the idea was not to try to force yourself to do anything you're not up to (or that you'd have to pay for later), but to find quiet activities that let you "be" together in a special way. One thing that occurred to me is to let them make a meal for you. I see from the pictures that they're little, but could they make you a PBJ sandwich? I bet they'd be thrilled to bring it to you with a glass of milk, and cuddle beside you on the couch. Maybe you're not eating bread or jelly these days, but there may be somethign they could put together that'd be simple for them, and a break for you (not having to worry about that meal). I don't know if this'll help at all, but like I said, I was thinking of you and your post. Take care, Jenn

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  • Goals

    Progress

    20 %

    Goal End Date is Oct 25, 08 24 days ago.
  • Support Groups

    • Close Lyme Disease

      diagnosed 2months ago. having trouble finding lyme literate MD. next appt 10/06 hoping this dr knows at least as much as me about this crazy disease. It's bad when you feel like your trying to educate the MD

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