Litefeet’s Profile

Close Multiple Sclerosis (MS)
Type: Relapsing-remitting MS

Diagnosed 2004, loss of sensation to R hand permanent. Since 5-6 relapses with progression each time. Was on Avonex since 2004, 2006 along with IV IG. 2008 3 relapses, Doc. suggest Tysabri/"lite-chemo"...procrastinated...usually with flare ups the IV steriods work. This last present flare up the steriods aren't working & from numbness to the L pinky, within about 3wks has progressed to my whole L side minus face. I'm scared,angry, hopeful, grateful,happy,bottom line very emotional

Treatments

Avonex Somewhat Helpful

I was taking it since d/o in '04. '08 has been the most relapses 3 within 4 m/o period with progression each time. So Docs say it's like I'm not on any medication. Time to switch to something else. I hated sticking myself every wk. Just occasional lowerback pn & HA sometimes.

Baclofen Not Working

no side effects, was given to me for spasms.

Neurontin Not Working

given for pain...not worked for the back/neck pain. No side effects.

Solumedrol Not Working

This had always worked for my flare ups in the past 4 yrs.! This last & present flare up 07/08 the IV steriods did not improve the numbness to my L side (minus face")...:( MRI showed alot of flare/active spots lesions to brain & c-spine.

IVIG Working / Worked

no side effects...guess it worked?...when I went off of it for 6 mo in 05 I had a flare up. Not sure the dosage it was a approx. 5 hour infusionbig bag