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  • Image of Jill1980t

    About Me

    I am an Assistant Director of Admissions for a college and we decided to go bowling Friday July 11th. I was eating a sandwich when the pain struck me. I had no idea why the roof of my mouth hurt so bad. The pain continued to get worse and by Sunday night I was paying a visit to the emergency room. They had no idea what was wrong with me and my mouth looked fine. I couldnt do anything, but cry from the pain and even crying made it hurt worse. They told me to see a dentist and I went the very next day. After numerous x-rays they found my teeth were completely fine. He suggested that I take an anti-biotic for a sinus infection and sent me home. I knew that I infact did NOT have a sinus infection. The pain always got worse as the night grew on. Monday night was the worst. I thought I was going to overdose on pain medication and drank a half a bottle of nyquil to knock myself out. Tuesday, I went to see an Ears, Nose, and Throat specialist. Once again she couldnt find anything and informed me that I didnt have a sinus infection.Imagine that? She ordered a CT and eventually admitted me to the hospital for pain management. I was there for 2 days and after an MRI, neurontin, and speaking with a specialist they found that I have Tremengial Neuralgia. I had no idea what that was and it seemed that the Dr. herself didnt know much about it. My boyfriend at the time decided he would rather go out drinking with his buddy than come see me in the hospital and I havent spoke to him since. I dont even know if he knows what I have. I decided right then and there that I do not need such a selfish person in my life. So, my life has turned upside down in a matter of one week. It started off with a fun time bowling with co-workers to moving out of my house and finding that I have a horrible painful disease. I woke up this morning on a blowup mattress in the middle of my living room floor and the upper half of my mouth completely numb and wondered how can so much change in a matter of a week?? I hope to meet some friends here and learn more about this TN.

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    • Hug

      From hintyy October 26

      Heey Hun, you okayy? xox

    • Hug

      From Sunflur October 15

      A Hug Certificate for You! If I could catch a rainbow I would do it just for you and share with you its beauty On the days you're feeling blue. If I could build a mountain You could call your very own; A place to find serenity, A place to be alone. If I could take your troubles I would toss them in the sea, But all these things I'm finding are impossible for me. I cannot build a mountain Or catch a rainbow fair, But let me be what I know best, A friend who's always there. This is a Hug Certificate!! Send One to All Your Friends Who You Think Deserve A Hug You might send it to your enemies as well! It'll really tick 'em off!

    • Hug

      From KathyTNA September 23

      I hope you will be feeling better soon.

    • Hug

      From KURT43 September 22

    • Hug

      From hintyy September 22

      Heey Hun, you okay? xo

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  • Support Groups

    • Close Trigeminal Neuralgia

      I just found out yesterday that I have neuralgia. It started on Friday and I ended up being admitted to the hospital for pain. I'm trying to find people with this disease.

      Treatments

      Neurontin Somewhat Helpful
      Makes me feel stupid and very blah. I am very thirsty all the time. I guess it is helping with the pain.
      Cymbalta Not Working
      Hated it! I took it for 2 days only and the side effects were horrible. I could hardly function.
    • Close Chronic Pain

      I was diagnosed with Trigeminal neuralgia. I have had it for one week.

      Treatments

      Hydrocodone Not Working
      Neurontin Working / Worked
      Oxycodone Somewhat Helpful
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