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    • My kids

      Mood October 6, 2008 10:27am

      My kids amaze me. We belong to a group of snowmobilers that take care of trail that we ride in the winter. We had all 4 kids plus my suto grandson, …
    • New Doc...

      Mood September 19, 2008 10:06am

      OK so all my bitching about having toexplain to a new doc about EDS.. this one knew all about it. Looks like I am going to meet a cadavor. THey are …
    • The kids

      Mood September 16, 2008 2:28pm

      I agree that most of the time I have the best reasons in the world to get going every day. My children!!! They keep amazing me, Ry the oldest took it …
    • I have had better days

      Mood September 11, 2008 8:29am

      So I have been waiting six months to get into a pain clinic. This clinic has a great reputation of finding altrenate treatments for pain. Of course …
    • The thing that make you smile..

      Mood September 9, 2008 8:33am

      So my son who also has EDS played his first middle school soccer game with no dislocation. YEAH... They did great as a  team and even though Ry …

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      From XsparkyX Friday

      Hey there, hows it going? I love Sukkot! don't you? It is one of my favorie festivals! Cant wait. just got home from having been at work, then Starbucks. Me and my partner met in Starbucks and we are having our engagement party there on Sunday 26th Oct. Have to look for a new outfit this weekend for the special occasion! good shabbas, x

    • Hug

      From petal69 Thursday

      Hi Robin........hope things are better hon! Love Lisa

    • Hug

      From petal69 Thursday

      I hope you start to feel better soon hon!

    • Good Luck

      From emk14 Wednesday

      maybe there will be a cancellation and you will get in sooner than you think but you need to stay positive and it will happen- stay well Erin

    • Hug

      From XsparkyX Tuesday

      thanx for your thoughts. x

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  • Support Groups

    • Close Ehlers-Danlos Syndrome

      I am a 34 year old with 4 children and we all have EDS.I have bee very pro active in my kidos treatments and have kind of let my self slip a bit until about 3 yeas ago when the paun got out of control.

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