chaynie2's Hugbook

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  Ray of Sunshine
  

  Kimof3 (11/29/08)

  glade this one is done. had a great time but i am paying for it now. hopefully it will be short lived. hope yours was a great one. we are supposed to get around 4 inches this weekend my kids can't wait. they are already praying for a snow day. we just may get a hole lot this year. no money to do a lot of plowing or salting. thats ok i love having them by my side.
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  I'm With You
  

  allie21766 (11/28/08)

  Hi Chris..I hope you and your family had a wonderful Thanksgiving Holiday..Enjoy the rest of the holiday weekend..Take care buddy..((((((((((((hugs))))))))))))) Allie
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  Hug
  

  debmc (11/24/08)

  Am glad your biopsy results showed no mito. You must be relieved. I'm still waiting on the prelimary results of mine, 3.5 weeks and counting. Muscle dysfunction is my biggest and most painful problem. I've had spasms as long as I can remember and the muscle imbalance resulted in early onset osteoarthritis e.g. feet and toes denuded of cartilage by age 30. My skeletal muscle doesn't hold my bones in place anymore and the imbalance and resulting torquing is what causes the recurring subluxations and dislocations in my legs, shoulders, arms, spine, pelvis, hips, etc. I also get "rubberband-like slapping" in my joints, which is a kind of tendonitis from the chronic hypertonicity and spasticity. I have permanent contractures in my both shoulders and hips and in my back. Consequently, I can't sit for any length of time. Even a few minutes aggravates my sacroillitis and worsens my pelvic tilt and my scoliosis returns w/a vengence. Some days I can't drive due to the spasticity. And I haven't been able to bend w/my back for over two years now, and must ration how often I bend w/my knees - makes life a real pain. I'm sure you know the feeling.
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  Hug
  

  allie21766 (11/19/08)

  Hey buddy...how are you...hope you are doing well...I was sick this weekend but doing much better...back at work again...haha...you are in my thoughts my friend...hugs to you allie
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  Hug
  

  Kimof3 (11/18/08)

  i joined that support group. that is where i found a dr. in my area. they also have where you can ask questions. i had one that so far no dr. i have seen has been able to answer but them. they also have confrences where you can go once a year to hear speekers talk about this and you can even ask them general questions. i like this place it is very helpful. glade you found it.
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  Hug
  

  Kimof3 (11/16/08)

  thanks for the hi, whats up is me. lol i wish i could go to sleep right now. i am not doing to well after the dds.hope to be back on my feet soon. i hate this.
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  Hug
  

  Kimof3 (11/12/08)

  thanks for all the info i hope i didn't over do all my question, but you did get me thinking.
• 
  Flowers
  

  allie21766 (11/11/08)

  Hi buddy...Glad you are feeling better....good to hear from you..Hope you are having a nice Veteran's Day...Enjoy my friend...Doing well myself...working lots..all good..((((((((((((((((((((hugs)))))))))) to you.. Allie
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  Hug
  

  Kimof3 (11/11/08)

  good news at the mda clinic. i tell you more about it latter. but i feal a lot better.
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  Hug
  

  Kimof3 (11/08/08)

  i am sorry that this is happening to you. hope that you will be feeling well soon. as well as we feel anyways. you take care of yourself.

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