Maggie222’s Profile
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Maggie222
is feeling Bad
About Me
Been living with this THIEF (MS) for 27 years now. Doesn't get easier & my passion is to find things that do make my life easier.
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Journal
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Hugbook
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Welcome to the group!!! From Jeni at http://www.msmagnet.org
Hug
Would love to know about the IgG and if and when it works. Also, the LDN. What are your symptoms. Wow 27 years you are an inspiration to me. I have been diagnosed for 7 and have been on Copaxone as long. Getting OLD. Can't stand the constipation and lack of endurance. Any suggestions?
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Support Groups
Close Multiple Sclerosis (MS)
Type: Seconday Progressive MSDiagnosed in 1981 while pregnant with my 2nd child. Did well till 1994 & had to go on SSDI. Always in search of something that can make a difference, usually alternative in nature, as not finding much help from Allopathic Medicine.
Treatments
- Baclofen Somewhat Helpful
- Only take 5 - 10 mgs. nightly, as I'm not too spastic.
- Beta Interferon Not Working
- Took 1995 - 2000. Only made matters worse! Glad I stopped & began treatment with LDN, which has been beneficial.
- LDN - Low Dose Naltrexone Working / Worked
- Been taking for last 8 years.
- Physical Therapy Working / Worked
- Off & on through the years. Probably would work better if I could keep up with it.
- Provigil Not Working
- Took for a short time. Only kept me awake, but gave me headaches, so I stopped.
- Solumedrol Not Working
- Had my very first infusion (500 mg for 3 days) & didn't experience any benefit whatsoever!
- Symmetrel Not Working
- Tried it several times, but nothing really to say of any benefit.
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Friends
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