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Girlypie’s Profile

  • Image of Girlypie

    About Me

    I am Young as you can see i was just recentely diagnosed with Marfan syndrome im cool and fun i get straight a's and i LOVE sports an i LOVE to fly on air planes i LOVE my family i LOVE my friends i am nice and great so say hi and drop bye!!1

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  • Goals

    Clean My Room

    Progress

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    Goal End Date is Aug 31, 08 5 days ago.

  • Support Groups

    • Close Marfan Syndrome

      I was recentely diagnisoed when the when they first thought i had it i did reasearch i had serious knee pain and when i read the charecteristics i was like thats me the next hospital appointment i was told i had it was sad then learned to deal i am doing fine as my first day to day i immediatley found this today when i came back from the hospital but really it is my first day with marfan syndrome.

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