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  • Image of wish2bpainfree

    About Me

    I am 41 years old. I also work as a Physical Therpay Aide and love my job.I was recently diagnosed with RSD after having ankle surgery 3/4/07 to repair Osteochondral Defect of the tibia (and tibia head drilling)from a long term ankle injury that was misdiagnosed. I also struggle with fibromyalgia and other health issues. I am a mom of 4 and a wife of a Hubby with a seizure disorder and who struggles from a brain injury that occured almost 20 yrs ago. My hands are full, my plate overflows and Im completely overwhelmed right now. I have been depressed and fighting anxiety and well, I have hit rock bottom emotionally. Im so empty inside. I feel like a tiny speck floating in a vast empty darkness alone.

    Interests

    I am creative and artistic. I love to write childrens books that encourage and bring hope. I also write peotry. Although its been a long time since I have lifted a pen (metaphorically speaking of course) and written from my heart, I do love to write. I think circumstance in my life have prevented me from writing anything recently but I will, soon. I LOVE the ocean. Its my passion and I get a sense of peace, energy and inspiration from it. My dream someday is to live by it. I lvoe to take long walks (been a while since I injured my ankle last yr though) hike and do anything that keeps me in motion. My worst enemy half the time is myself; I am a pesamist(spelling?) and hope someday that will change (becuase negative energy attracts only negative energy...you think me knowing this would ahve changed me already). I have two cats, 4 parakeets, 1 dog, My hubby Rick and four great kids (2 are his 2 are mine but together we make a veyr blessed family). Im not even close to being monatarily, but I am rich becuase of the love that surrounds me with the 6 of us as a family (and the zoo LOL)

  • Recent Activity

    Yesterday

    August 17

    August 14

  • Journal

    • August 4, 2008 - "who am I to complain? Shame on me"

      Mood August 4, 2008 7:59am

      I wrote the following in a post on another support sight I go to for Fibromyalgia and CFS.

       

      I figured Id write it here becuase its just another …

    • August 2, 2008 - The girls left today for Band Camp....

      Mood August 3, 2008 12:11pm

      Watching them scurry around packing their suit cases I realized omg they are growing up fast. One is 15 the other is 15 1/2. Both going into Sophmore …

    • August 1, 2008 - A new job, a new beginning

      Mood August 1, 2008 3:01pm

      I got hired for a new full time job today w/ benefits and paid sick, vacation, personal and holiday pay. Its a custodial position, not so glamorous …

    • July 30, 2008

      Mood July 30, 2008 7:44am

      Today my 11 yr old youngest daughter is going for a colonoscopy and an endoscopy. I didnt sleep very well last night becuase Im worried for her. She …

    • July 26, 2008

      Mood July 26, 2008 3:16pm

      Today is a day after I had my first nerve block for the RSD in my foot. I was a wreck all day yesterday and didnt sleep all the night ebfore. Im glad …

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  • Support Groups

    • Close Reflex Sympathetic Dystrophy

      Recently diagnosed w/RSD (at end of this June).I injured my ankle last july 29, 2007 from being silly on a trampoline and went for months & months of wrong diagnosis and 4 months in boot cast with pain every day.March 4 I had ankle surgery.Doc found a mess in the joint and no cartelige left on the tibia.I was diagnosed with Osteochondral defect. She debried the head of bone then drilled small holes in it.Now I suffer from RSD. Pain mngment Doc said it started way before the surgery (I DISAGREE)

    • Close Epilepsy & Seizures

      My husband suffers from Post Traumatic Seizure disorder. His Epilepsy is from a severe head injury he had when he was 17 yrs old. 16 yrs later, he began a seizure disorder. Its been a struggle for us, especially me sicne I am the only driver in the house, we have 4 kids and I have alot of health issues but I have to be the glue to hold this household together and it gets so voerwhelming.

    • Open Fibromyalgia

      I was diagnosed with fibromyalgia when I was 33 but I had it for years before I was finally diagnosed with it. In my early 20's my doctor thought I had CFS. Personally, I feel I ahve both and they are hand in hand with each other. Everyday is a struggle; some days are easier then others but because of ym stress levels being so high, I always feel yucky and tired and in pain. I dont think there will ever be a day in my life where Ill ever function normal ever again.

    • Open Chronic Fatigue Syndrome

      I was diagnosed with this when I was about 20...by the time I was 33 I was then diagnosed with fibro. My Doctor feels I have both adn they are sorta of hand in hand.

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