going to councliling with my sis and mom
September 5, 2008 10:42am
today is the first day of the rest of my life-or at least that is phrase that i can insert here that seems to fit-somewhat, i guess. …
Progress
40 %
gracieslite’s Profile
-
gracieslite
is feeling OK
1st faily counciling session with kathy....i am a bit apprehensive!
About Me
I have been married for almost 15 years to a crazy, wonderful man who i am soooo very in love with! ted, my husband, has held our famly together for the past 3 years. he works full time, and then he comes home and cleans the house because i am unable to do it at this point in time. i do not think i could go on if it weren't for his love and help. we have 3 handsome (they hate when i say they are beautiful, but they are)boys. all 3 of our children are diagnosed with autism spectrum disorders. eli is 13, jeff is 12 and sammy is 10. i am a housewife, and i homeschool my youngest son. in 2003 i got sick, and to date things have gone crazy inside of me. i am still looking and researching and shoving papers and old drs. notes under peoples' noses. when i am feeling good, i like to educate people about autism. i was the founder of an autism support and advocacy center, but i have not been able to help people as much as i did in the past due to my illnesses. i plan to write a book about autism and also continue to do what i can in the promotion of the realities of what autism is and is not.
Interests
autism, reading, writing, cross-stitching, promotion of civil equality for people with autism, psychology, researching my medical conditions
-
Recent Activity
- Sorry, there is no activity in the My Activity feed.
-
Journal
-
-
time for rest
August 24, 2008 4:40am
it is time for me to rest!!! the last week has been so difficult that i have forgotten to really take alot of time and rest. my body and …
-
makingit
August 21, 2008 8:04am
my entire life has been turned upside down flipped inside out and rewashed. i am making it.
my sister's suicide attempt woke something …
-
suicide attempt
August 19, 2008 6:50am
i was up yesterday morning at about 1:30, and the telephone rang. usually when the phone rings at that hour, it's one of ted's friends …
-
bad day
August 16, 2008 7:02pm
i am so lost. i don't know what to do about our oldest son. he is always miserable and he rarely has anything nice to say to …
-
-
Hugbook
Hug
Hi Gracie! WHat happened with your counseling appt? DIdn't it go well? How are you doing?
Hug
I miss ya I was without a computer for almost 4 weeks - are u ok
Hug
Stopping by to say hi and I'm ok! Having to move, so hopefully things will be settled down in a couple weeks.
Hug
This man falls in love with a dutch woman who wears inflatable shoes. So he called her up one day to make a date, but unfortunatley she popped her clogs! Welcome to DS..
Hug
I just thought I would check in and see how you were doing I haven't talked to you in awhile. Love to ya!!! HUGS~~~
-
Photos
-
-
Support Groups
Close Chronic Fatigue Syndrome
i was diagnosed with fibro 5 years ago, but as i researched it i knew it was not the only thing wrong. since then i have been diagnosed with arthritic bone spurs, and arthritis in other areas. only recently did i read up on cfs/me even though everytime i researche fibro it was right there. i meet every criteria for m.e. and cfs along with the fibro.
Treatments
Close Anxiety
i was always a social butterfly until i got sick in 2003. i have a sleuth of health problems, but i also have major agoraphobia and panic attacks. most days i don't leave my bedroom unless i have to go to the bathroom. i can't leave the house unless it is necessarry.
Treatments
- Breathing Exercises Somewhat Helpful
- Breathwork Somewhat Helpful
- BuSpar Not Working
- Inderal Not Working
- Klonopin Not Working
- Lexapro Working / Worked
- worked for a while
- Meditation Working / Worked
- when i can do it
- Remeron Too Soon to Tell
- Valium Working / Worked
- good muscle relaxer, but not for anxiety
- Xanax Working / Worked
Open Fibromyalgia
i was dx'd with fibro 5 years ago, but i also have cfs/me adn arthritis in between some of my vertebrae (bone spurs) and osteoarthritis in several other joints.
Treatments
- Aqua Therapy Not Working
- Cyclobenzaprine Somewhat Helpful
- it is not strong enough to keep my muscles from roping up
- Cymbalta Not Working
- absolutely did not work!!! it made me suicidal and increased my anxiety so much i couldn't leave the room i was in except to go to the bathroom and i tried to hold it as long as i could. it was a horrible experience
- Duragesic Patch Working / Worked
- i am now on the fentanyl patch. i was on 75mcg/h, then the new dr. knocked it down to 50mcg/h because "there is no reason" for me to be in "pain that bad"
- Effexor Not Working
- same result as cymbalta
- Elavil Not Working
- did not help at all-usually given for sleep.
- Heat Not Working
- it may help right then, but in 20 minutes my muscles and joints hurt just as bad as they did before. the heat doesn't get the muscle next to the bone.
- Lyrica Working / Worked
- helped with pain in my legs
- Morphine Working / Worked
- Neurontin Working / Worked
- Ultram Working / Worked
- i use this for days that i am flaring badly
- Vitamin B12 Somewhat Helpful
- Carisoprodol Working / Worked
- i was taken off of this and put on flexiril by my new dr. soma was the only muscle relaxer that helped me.
Open Chronic Pain
i ahve been diagnosed with fibro and i believe that i have cfs. i also have osteoarthritis/spinal stenosis in my back. i have been in pain for over 5 years now, and keep getting dismissed by drs. my life has changed severely.
Open Depression
i am 32 years old and the mother of 3 kids on the autism spectrum and i am happily married to one man on the autism spectrum. 5 years ago i was diagnosed with fibromyalgia and since then some arthritis and other conditions. i have since researched and found that i fit nice and snug under the dx of cfids. i have been dx'd with chronic depression and bipolar (whichi i disagree with), i also have agoraphobia and major anxiety disorder! i am a crazy loon in pain!
Treatments
- Celexa Somewhat Helpful
- Cymbalta Not Working
- made me want to commit suicide
- Effexor Not Working
- made me want to commit suicide
- Elavil Not Working
- was a waste of my time as a sleep aide and an antidepressant, but it has worked as a sleep aid for many people i know
- Geodon Not Working
- was a waste of my time
- Lexapro Working / Worked
- worked very well for 3 years
- Meditation Working / Worked
- if i can do it somedays i just can't get my mind right, but when i meditate on a regular basis it does work
- Paxil Not Working
- Positive Thinking Not Working
- can't do this in the middle of a major flare up or bad bout of the blues
- Prozac Considering
- i took this so long ago that i can't remember if it worked or not-i mean i was 11 and i am 32 now, so that is a long time ago
- Psychotherapy Working / Worked
- with the right therapist
- Seroquel Somewhat Helpful
- i had gross motor tics
- Support from Friends & Family Working / Worked
- i have a wonderful family-my boys & my husband, and my best friend for 20+ years. but the rest of my family is not supportive
- Trazodone Not Working
- was a waste of my time as a sleep aide and an antidepressant, but it has worked as a sleep aid for many people i know
- Wellbutrin Not Working
- Writing Working / Worked
- if i can stick to it
- Zoloft Not Working
Open Prescription Drug Abuse
i was rx'd narcotics for chronic pain. i was able to maintain correctly for about 6 monthes, then it all got out of control. i decided that i would kick and almost died, so the drs put me in the hospital and i was on a quick medical detox. i was on methadone for 2 weeks, and then it was over. i am now on a patch for pain relief and i have been able to maintain on that pretty well.
Treatments
- Meditation Working / Worked
Open Home Schooling
i homeschool my son who has asperger's syndrome and the public school was unable or unwilling to meet his personal needs.
-
Snapshot
gracieslite hasn’t been active on the site in a while. Why not give gracieslite a hug?
