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Joanna10’s Profile
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Joanna10
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About Me
I got fibromyalgia and lymes disease in Dec. of 1999 and was living my life in bed I was in so much pain. Finally the lymes disease was taken care of, but nothing was done for the fibro which was causing extreme pain in my spine (especially the lower spine... it feels like someone is pulling it out.. and then I had all thses other symptoms like migranes, IBS, insomnia, depression, memory loss ... I can forget an entire conversation I had... Irritable Bladder Syndrome, and soreness in my neck and back that gets worse as the day goes on. At first many doctors just told me it was in my head. Then finally I found a doctor that diagnosed me with fibro, but the bad news was he said there was no cure. I refuse to believe that. In my heart I know some day I will be free of this. I just don't know when, where, or how.
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Close Fibromyalgia
Sometimes with fibromyalgia I get things a little mixed up. I think the top portion should have gone down here. But I recently moved to LA to follow my life long dream to me an actress, and it's been very challenging physically. When I'm on set I have to take pain pills to get through an all day shoot, becaue I'm consantly up on my feet doing somethng or waiting. It's been hard because I left me support system (my family and friends) and I don't know anyone out here. if I'm feeling really bad, I don't have anyone to call to go to the drug store to pick up my meds. So needless to say it's been a challenge. But I'm pushing through. I'm trying to find a doctor here that treats fibromyalgia and pain managemaent, but I don't know where to start. I feel very isolaed. That's why I wanted to join this group.
Treatments
- Psychotherapy Working / Worked
- Since I recently moved to LA and know no one it has been helpful because I have no one to talk to about my disoder.
- Writing Working / Worked
- Journaling helps me get out my feelings and sometimes Im surprised at what comes out. The first page of my Journal says rantings of Joanna Private. And thats really what it is me just getting me ranting out on paaper and ofter I realize its really not as bad as it could be.
- Positive Thinking Working / Worked
- If I start to have negative thoughts about my body I catch myselt and change it to a positive one. Even if Im in pain I do this. Somethimes it works sometimes it doesnt. But when it doesnt Im always carefully to remind myself of the positive things that I do have and am blessed with.
- Support from Friends & Family Working / Worked
- Sometimes they are supportive but often they just dont understand and say things like Oh you just need to get out of the house and do somethin and youll feel better. Then dont understand the depth of the pain and how severe it can be.
- Ambien Working / Worked
- Ambien really helps me with my insomnia. So does meditation and deep breating at night. And listing to the rainfall its soothing.
- Levitra Working / Worked
- I just started taking it and no changes have taken place yet.
- Topamax Working / Worked
- Has really helped with the stapping pains I get. i still get them but far less often. In fact its very rare that I get a stabbing pain now.
- Ultram Working / Worked
- Helps with the arthritis in my hands.
- Vitamin B12 Working / Worked
- Take weekly injections. Seems to help my energy for the first two days.
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