caroljo’s Profile
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caroljo
is feeling OK
About Me
I was diagnosed with Lupus in 1993 aftre being ill periodically for many years, since my 20s and maybe earlier. I retired from my massage therapist practice in 1998 due to the Lupus. I had a successful practice and treated mostly injury or post surgical cases under prescription from doctors. I am a widow, losing my husband to cancer in 1997, he was my rock and caregiver. I had to leave my home in Hawaii due to the high cost of living there and have moved tothe midwest. I have a very close couple who are friends and take care of me when I am feeling badly. I have 2 children and 3 grandchildren. I feel the Lupus is getting worse as I age although I am on tons of meds that help I am sure on most days. I could use some support and talk with others who have Lupus as we are the only ones who really know how strange it can get.
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Recent Activity
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Journal
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Photos
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Support Groups
Close Lupus
I have told it in the above section. I am 62, widowed and I have 2 children and 3 grandchildren. I have had Lupus most of my life.
Treatments
- Effexor Working / Worked
- I am on it now and have been for a few years but some days I dont feel it is working when the Lupus is acting up badly. Maybe that is unavoidable though.
- Benicar Working / Worked
- DHEA Working / Worked
- Flexeril Working / Worked
- Knocks me out so I take a half tab and hope for reilief unless I need to sleep
- Folic Acid Working / Worked
- Hydroxychloroquine Working / Worked
- Lunesta Working / Worked
- Take a low dose about .75 mg before bed to help me sleep. Pain will still wake me in early AM hours so I take Vicodan then for pain.
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Snapshot
caroljo hasn’t been active on the site in a while. Why not give caroljo a hug?
