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  • Image of dee4short

    About Me

    pituitary tumor removed aug. 2007. gf rising again, headaches back, fatigue, going in for radiation

  • Recent Activity

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  • Journal

    • Journal Entry for August 2, 2008

      Mood August 2, 2008 11:40pm

      Howdy all,

      Sorry I haven't been around lately.  I have started my radiation treatments. Between radiation, sandostatin injections, …

    • NEWBY HERE...HOWDY

      Mood June 26, 2008 10:24pm

      Hello all, New to the group, so will fill you in. Had my surgery in august 2007. After recovery of 2 weeks was feeling pretty good for a few months. …

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    • Hug

      From PapillonRoseBleue Tuesday

      Just a quick hug to let you know I'm thinking of you

    • Hug

      From flouncy Saturday

      come and see our new acromegaly group!! http://dailystrength.org/groups/th...

    • Hug

      From flouncy Friday

      come and see our group for the appreciation of ds. http://dailystrength.org/groups/th...

    • Flower

      From PapillonRoseBleue August 11

      Dee, I hadn't read your journal until after I sent the hug, now I see that you already have a treatment plan in place so I'm sorry for writing about the other options. Here's hoping that the treatments go well and smoothly and that you feel better soon. Rose

    • Hug

      From PapillonRoseBleue August 11

      Dee, have you checked into the gamma knife radiation for the tumor that is wrapped around the artery? I ask because I have (or had) an issue of tumor wrapped around the carotid artery and there was talk of only removing 98% of it during the transspenoidal resection and then going back in 3 months later to remove the other 2 per cent with the gamma knife. There is some talk of less residual damage to healthy tissue than with standard radiation and also the benefit of being able to work in dangerous places such as around carotid arteries.... In any case, here's a big hug for you. Rose

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  • Support Groups

    • Close Acromegaly

      diagnosed july 2007, surgery august 2007, symptoms returned, now going in for radiation

      Treatments

      Octreotide Too Soon to Tell
      did initial 28 day self injection. Now getting 1 injection a month at endo. Set me up for radiation treatments now. Do blood workup end of next month...so will see
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