Feeling frustrated...
I am feeling frustrated right now..I am hoping that by writing out all the these thoughts going through my mind …
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Well today was a good day. Nathan has been on meds for his heart for a week now, and we just came back from a visit with the cardiologist. The meds seem to be helping, so that is great news. He however, lost weight. So after talking with a dietician we are going to give a new twist to making his formula a try. We will be going back to the cardiologist next week. If you want to follow Nathan's progress, I will be posting on his blog more regularily than here. Feel free to check it out. http://nathan-martinsjourney.blogspot.com/
My older munchkins had fun playing in Oma's pool. And were good so I am told, lol. It's nice how they can get along for others and fight continuously for me..Why is it that kids are like that? Really, there is something wrong about that, lol.
Coming this weekend we are getting Nathan baptised. I am very excited. We have the cutest little outfit for him..I wonder if it will make it through the day without any stains??
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I didn't realize that your little one had DS. My ped cards and surgeons have told me that babies with DS do ALOT better with heart surgeries and long term after their repairs than babies who do not have DS. There is no scientific reason, but it does seem to be true. Hope that makes you feel better about his surgery coming when it happens.
sjr26