cast off
August 11, 2008 7:28am
good morning to everyone. I am on cloud nine today as tomorrow I get my cast off and can start to weigh in again. will be able to control …
Dottys’s Profile
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Dottys
is feeling OK
About Me
I am 56 yrs old, retired RN on disability. Married to a wonderful guy and have two growen children with 6 grandgirls. I have had many spinal injuries. from various falls. i have fractured my back in a car accident. had a stroke, fractured neck (C2) from a fall down stairs. I have MS. and ashma and now sarcodosis, as of 6 months ago. It has affected my lungs, lymphs, spleen, jaw, and bowel, and now my joints. It has been going along fairly good until they started tappering me down on steriods. Altho I gained 5o lbs, I had hope it was working until my joints started hurting to the point that I can not walk. So I am a little down and needing support from others contending with this desease. I have great support at home but need you guys. Dotty
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Recent Activity
August 11
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Dottys wrote a journal entry: cast off 7:28am
good morning to everyone. I am on cloud nine today as tomorrow I get my cast off and can start to weigh…
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Dottys changed their mood to OK 7:28am
July 18
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Dottys gave Debora a Good Luck wish 7:33am
Debrora..You can find out lots of information about sarcoidosis on the internet. I am a nurse and have…
June 29
June 24
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Dottys joined the Sarcoidosis support group 4:40pm
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Journal
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pain
July 23, 2008 7:26am
7/23/08
I am still in a lot of pain. I see not alot of improvement over the last couple weeks. It makes me …
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depressed
July 18, 2008 7:38am
I fell yest trying to sit in chair and it rolled out from under me. I hurt today but not bad yeah!!!! I have been getting subtle hints …
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Better Days ahead
July 11, 2008 8:30am
7/11/08Well today I am feeling better. my bones are all healing. I am puzzled as to the cause. I believe it is steriods that …
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I understand love ya caroline
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Hello, Sorry to hear the breathing's worse. What about the ankle? Is that healing ok? I'm not surprised you're getting puffed out; even without getting worse, this would be exhausting and a strain. My breathing's fine until I start gardening or moving furniture or shopping, etc. I get quite short of breath but nothing dangerously so like a few years ago so I'm counting my blessings. Take care. Willemina
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Just came by to say hello
Flower
hi dotty, i am on holiday in portugal, algarve until 30 july, thanks for message , i was checking my emails and saw this from you , hope you are feeling good speak soon gillr
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Hello Dotty, It's me again. This is amazing. I was so interested in what you had to say about your mother. I used to be in the WA Opera Co (Australia) and have done classical singing all of my life. I made a recording for my kids because I thought it might be my swansong. Sarcoidosis is not the best for singers. The lack of breath isn't so bad. I can sing with very little breath and make it last, but it has effected the throat muscles. When I sing for just a little while, my throat muscles tighten and then go into spasms. I also get headaches the moment I open my mouth but I can't give it up. I have a pianist who rehearses with me and is very understanding so we practise, stop for a cuppa, practise, stop for a cuppa, etc! I'm having a music afternoon in 2 weeks. Musical friends come over and we all perform to each other. It's like going to a terrific concert but better because they're friends and it's a social at the same time. Hope you'll have a better week. Willemina
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- Advair Working / Worked
- Antivert Working / Worked
- Colchicine Too Soon to Tell
- Lasix Working / Worked
- Neurontin Working / Worked
- Nexium Working / Worked
- Prayer Working / Worked
- Prednisone Working / Worked
- works until they tapper down. but I gained 50lbs
- Reglan Working / Worked
- Relafen Working / Worked
- Singulair Working / Worked
- Xopenex Working / Worked
- Zocor Working / Worked
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