My good health
May 15, 2008 5:20pm
In 1999 after being very ill fora year I was diagnosed with Large B cell aggressive non hodgkins lymphome.. I went through 4-5 years of brutal chemo …
topnana’s Profile
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About Me
In 1999 I was diagnosed with aggressive large b cell non hodgkins lymphoma..that was my life sentence- I needed to get in touch with who I was, As well as go through high dose chemo, broken bones, relapse, radiation hospitalization, grandchildren born, son' drug addiction, depression , hair loss, business loss, and countless other things.. The last time I had chemo was four years ago after I was told that I would not last for too long.. I was on an oral dose of palliative chemo
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Recent Activity
Wednesday
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topnana updated their status 10:29am
feeling great tjese daus…
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topnana replied to captra’s discussion post non-hodgkins versus hodkgins in the Non-hodgkin's Lymphoma support group 10:19am
Just to encourage you .. it is all very confusing even for the patient. and if you are not constantly…
June 22
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topnana turned 57 12:00am
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Journal
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Journal Entry for March 30, 2007
March 30, 2007 5:20pm
Last monday I went to a kidney specialist.. My blood pressure was 210/90! Not good! After a year of struggling with this I am finally on …
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Journal Entry for March 21, 2007
March 21, 2007 11:37pm
today was a quiet day! I had breakfast with my daughter Andrea and her girls.. That is always good.. I love and adore those girls-they give me a …
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Journal Entry for March 16, 2007
March 16, 2007 12:05am
Well I am thrilled to find this site! I have looked for something like this for so long.. I am hoping to connect with other people who struggle like …
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Hugbook
Hug
Hi, it's been awhile since you've been on. I hope things are going better for you. /big hug!
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Hug
Thank you for our support mill
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Flower
thank for your support I was dx with myeloma I also have lupus if you need to talk am here mill
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Prayer
Thank you so much! I will keep you in my prayers!
Flower
You are so right! I bet they wouldn't be so quick to brush off our questions or complaints of pain or whatever then! Problem is, I only have one friend that lives close enough and doesn't work. And, she isn't able to get around much herself! But, I will remember that, in case I do think of someone! A friend of mine knows a girl whop got to have a nurse 24/7 while she had that treatment. It is a 9 month thing...in many cases. And she was on Medicaid like I am having to be on. Carol doesn't know how to get ahold of her now though. But I'm going to ask about that for sure!
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Photos
topnana hasn’t uploaded any photos yet
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Support Groups
Close Non-hodgkin's Lymphoma
Type: High Grade Non-Hodgkin\'sWell I told my story above.. I am 56 now and celebrating each day I have. I am living in the moment,enjoying my friendships, children and grandchildren{5 of them, all born during and since my diagnosis}
Close Chronic Fatigue Syndrome
I was diagnosed with epstein barr virus in 1989. which manifests like chronic fatigue syndrome.. of course then I got non hodgkins lymphoma, I have battled this for so many years I do not remember life without it!
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Snapshot
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