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ILoveES33’s Profile
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ILoveES33
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About Me
Hmmm... I live with my parents, have 3 cats & 2 dogs. My best friend also has 2 kitties, so I'm also an aunt! Lol. I love to go to concerts & hang out with family. (I consider my friends family), so I usually don't distinguish between them. I also love to sing, paint, write, & walk. If you want a full profile on me, visit: www.myspace.com/nonpointchica I'm pretty much an open book & I love to get to know people.
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Hugbook
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ok thank u very much
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thanks. wait where can i get those numbers?
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Thanks for your response. I cant imagine going through all that you have. I wish that I had half of the courage that you have. Thanks again so much for letting me know a little about you. I checked out your website and all I can say is that you are a true woman and someone to be looked up to! Melissa
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Hug
Wow, you have been through so much. 63 surgeries! I checked out your myspace page, looks like you like a lot of music. Me too. I do not know much about being blind. I am sure it changes how you perceive people. It seems like so many first impressions are at first sight. Have you always had no eyesight? So are you finding life is a lot better when you have reached non-school age? I do. I am very thankful that I am not a child and not in school anymore. Sometimes I wonder that when I introduce myself to new friends, if I should come out and say, "in case you are wondering....i was born with a cleft lip / palate...any questions...?" I think maybe that would combat the unwelcome stares?? I guess people are afraid to ask because they might offend. I've asked friends or boyfriends if their families have ever said anything, and sure enough, as soon as I am gone, "so...what was different about her...??" Ha. I bet I could explain it better. Thanks for replying to me!
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Support Groups
Close Cleft Lip / Palate
I was born with a Bilateral Cleft Lip/Palate, as well as a Bilateral Tessier Cleft. I've had 63 reconstructive operations so far & am in the process of trying for another one. Feel free to ask me any questions at all & I will do my best to help you out.
Close Blindness & Visual Impairment
Type: Totally BlindTo long to explain really. Look at the link in my groups for Cleft Lip/Palate, that's part of it to. I was born with a severe Bilateral Tessier Cleft that runs the entire length of my face up into my mouth/nose/eyes. I've had 63 reconstructive operations thus far & will need more. I joined to offer support to others. Feel free to ask questions.
Treatments
- Humex Working / Worked
- Theres nothing that can fix my blindness so Ive learned to adapt to it. I was born this way so I use Braille have a cane. I have a computer that has a talking program called JAWs thats how I can read the messages here at other sites. So this works for me.
Open Polycystic Ovarian Syndrome (PCOS)
I don't even remember exactly when I was diagnosed the first time, but it lead to several more physicians visits just to be sure. Turns out I don't have cysts on my ovaries, but they still say I have PCOS.
Treatments
- Metformin Too Soon to Tell
- I admittedly don't have much to tell. I guess I'm just here basically for support/to offer support. My major concern is that treatment won't work & I won't be able to have kids later on.
- Oral Contraceptives Considering
- N/A
Open Pregnancy - Teens
My teenage sister was pregnant, but miscarried. I was pretty much the only person she could lean on, so I'm just here to help. I figure she wasn't the only one who needed an older sister's help because the rest of the family wasn't helpful.
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