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  From EmmaDoodle July 31

  Hey there! I have been exactly where you are right now. Its not easy and everyday is a struggle, but keep pressing on. People don't understand, and they never will unless they go through what we go through. I'm here if you want to talk...anytime. I have aim and yahoo messenger if you want to talk on there sometime. Just let me know....

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  From smileemptysoul June 23

  Hey

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  From ILoveES33 June 19

  I am definitely glad to be out of school!! It's terrible, because I've often said that if my diploma ended up in our fireplace I wouldn't care to much. (sigh) Maybe those feelings will calm down the farther away I get from being school aged. Yes, I think I said that I was born with a Bilateral Tessier Cleft. It affected my entire face all the way up through my eyes, so that's why I have no eyes. I now have prosthetics. But when I was first born, my face was completely open. They had to put balloons in my cheeks, then run a tube through side of my forehead, closer to my hairline actually, to inflate those balloons. Then Doctor Argenta was able to close up my face. Once it healed he was able to bring my top lip together & when I got older he took a rib bone & 2 skull bone grafts to build up the bone structure in my face. He's taken fat to fill out my upper lip, but it still sticks close to my top teeth. I went through the whole kit & kaboodle, expander to bring my teeth into line, braces & then the retainer to keep all the work in line. What a trip, huh? Lol. I can't really say anything about that because I guess it's to each his own. I used to automatically tell online friends that I was blind, but they didn't believe me. I sent one girl pics of me so she could see that I'd had surgeries & everything. She wrote me back & said she thought I'd doctored the photos. I said: "Right, because I have nothing better to do then make people feel sorry for me." We haven't talked since. It still makes me angry just thinking about it. Who would invent getting the crap beat out of them & having to have all those surgeries for fun?? Even as I say that I know that there are unfortunately, people who would, but I just can't believe that. It infuriates me! Ahh well, guess that's the way things go. As for in person, you're right. First impressions are almost always at first sight. My first impressions are nothing like that. I pay attention to how the person treats me. What do they say & how do they act? If they seem uncomfortable I'll do something to break the ice for them. Lol. For example: I'll look for a pair of glasses. If I can find some, reading or sun, it doesn't matter, I'll put them on & go: "Look, I can finally see!!" Or I might pick up a newspaper or book & go: "You know, no matter how close up to my face or far away I hold this thing, I just can't see it!" Lol. So that's my response. Do you have a myspace? I figured we could link up there to if you do. (smile) Ttys, Michelle

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  From mesk June 19

  random hugs x

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  From ILoveES33 June 19

  Hi! I was born with a Bilateral Cleft Lip/Palate. I also have a Bilateral Tessier Cleft that runs the length of my face up into my nose & eyes, which means that I have no eyesight. Because of all of my birth defects I've had 63 reconstructive operations. I just saw that noone had replied to your post & I wanted to tell you that I'm around if you ever want to talk. Off topic, but everyone asks so I'll just get it out of the way. (smile) I have a computer program called JAW's that talks, & that's what allows me to visit websites & email friends. Feel free to ask any other questions you like. (smile) Also, as an aside, if you visit: www.cleftadvocate.org & look under the Family To Family Connection, there are others there with Cleft Lips/Palates. You might also be able to give advice to parents with Cleft Affected kids. They worry about their kids alot. I know I really enjoy being there. It's just a suggestion, so feel free to take it or leave it, no pressure! It's just one of the things that's helped me. I know I always had this idea of being alone when I was younger & I hated that. So when I realized that I was wrong it was a great moment for me. I never had to move around, but I used to get punched, kicked & spit on by the kids. I went to a mainstream public school. So I've had the image issues as well, still do, but things are starting to change for me. Anyway, sorry this is so long! All I intended to do was send a hug, now I'm writing a mini-autobiography for you! Lol. Hope to talk with you sometime, Michelle

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