cold
July 24, 2008 12:47pm
It is cold here in Fairbanks. I am just about ready to bake some sourdough oatmeal bread that I am making and I am going to start some starter …
Tipperon’s Profile
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About Me
My Fibro ruled my life until I decided to go with the flow and take it one day at a time.
Interests
I love to quilt, crochet, sew, gardening and cooking.
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Recent Activity
Today
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Tipperon wrote a journal entry: cold 12:47pm
It is cold here in Fairbanks. I am just about ready to bake some sourdough oatmeal bread that I am making…
Tuesday
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Tipperon wrote a journal entry: Weird 2:29pm
I'm not sure where to begin, typing is hard, every word is hard to type with my fibro today. Had…
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Tipperon changed their mood to OK 2:29pm
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Tipperon commented on MariK’s journal entry Still feel like crap 2:02pm
Ahh, the meds can make things taste terrible! Have a nice cup of tea and relax. Kitchen can wait and…
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Tipperon commented on MariK’s journal entry Just one more thing.... 1:55pm
Hang in there. At least you know that the economy will rebound, it just takes time. That is the hard…
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Journal
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Weird
July 22, 2008 2:29pm
I'm not sure where to begin, typing is hard, every word is hard to type with my fibro today.
Had to kill a mad moose the other day, it …
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ARGH
July 10, 2008 11:12am
I haven't written in a bit and thought I would get a few things down. Lately, life has been odd to say the least. Sister is going …
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Hubbies travels
June 29, 2008 5:56pm
Well, hubby started his bike riding trip to the Canadian border on Sat. It was a rainy and nasty day for the start, but off he went with a …
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Oh Yeah
June 25, 2008 2:42pm
I started to move around more since May and I have lost 17 pounds so far. I'm glad that the extra movement is doing so well. We …
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Hugbook
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thank you so much for your journal comments... you sure hit the nail on the head when you said even when it seems too hard to even breath... i know these times will pass, but right now the weight is so heavy... thanks again for your support... xoox
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hope you have a nice 4th of July!!!
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hugsssssssssssssssssssssssssssssssssssssssssssssssss and lovessssssssssssssssssssssssssssssssssssssssssssssss
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HI,Tipperon yes this can be a very hard illness I have a hard time just keeping my place clean.do you have good support and a good Dr? this is CFS/Fibro/Ed
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Photos
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Support Groups
Close Fibromyalgia
I used to be a perfectionist and liked to have things under control. Now with Fibro, I try to take each day one day at a time. Hey, tomorrow can be a great day and today only lasts so long. Each day I try to do something I like as a reward, come good days and bad. Sometimes I can't even read, talk, walk, or think. But other days I feel like I used to. That is what makes Fibro so hard, it has changed my life in so many ways, some good and some bad.I just enjoy my good days even more.
Treatments
- Imitrex Working / Worked
- Seems to be helping with my migraines
- Midrin Somewhat Helpful
- I used this before the Imitrex. Now I use it occasionally
- Morphine Working / Worked
- It has given me back my life. I still have alot of pain but it helps to take some of the punch out of it. I have used alot of different pain killers,this is the best one.
- Clonazepam Working / Worked
- For restless legs, it works better then mirapex for me.
- Flexeril Working / Worked
- For muscle cramping, I only use it occasionally.
- Restoril Working / Worked
- I only use this occasionally, however it does work to help me get to sleep.
- Inderal Working / Worked
- I help stop my racing heart and to help with my headaches
- Codeine Too Soon to Tell
- For break through pain, not sure if this will help.
- Restoril Working / Worked
- I only use it occasionally for sleep.
Close Food Allergies
I have alot of environmental allergies and also foods. They have changed over the years and certain times of the year I can "get away" with eating some foods I should stay away from. My food allergies are worse when my environmental allergies are active so normally winter is a better time of year for me. Egg,shellfish,nuts,yeast,certain meats and veggies,fruits and soy. Also medicines and bees cause me grief.
Treatments
- Allergy Shots Somewhat Helpful
- At one time I had 18 shots a week to try and get my allergies in line. I had an anaphaxic reaction to bee venom testing to see if I was allergic to bees.
- Avoid Certain Foods / Chemicals Working / Worked
- I should stay away from everything I am allergic to. But I can't live in a bubble.
- EpiPen Working / Worked
- Always, always carry it with me. You never know what people put in food, or what bees might be around. Also, I carry a list of drugs I am allergic to.
- Singulair Working / Worked
- I use this at night and it helps to keep down my hives.
- Allegra Working / Worked
- I use this during the day and it does well for my allergies.
- Patanol Working / Worked
- This really helps with my swelling eyes, I also use cold eye compresses I keep in the refrig.
- Nasonex Working / Worked
- I have used other nasal sprays but this one works the best for me, dries up that nasal drip and helps to control my allergies.
Open Migraine Headaches
I get different degrees of migraines from short ones to long term ones. Also different degrees of pain, some send me to the hospital for only the relief that an IV can give. I also used to get daily headaches. A pain Dr. froze a nerve in my head and thank the Lord those haven't come back, I guess it should last 6 months to a year for the nerve to grow back. The constant pain can get you down, you have to have different ways to cope with each type of pain, take each day as it comes.
Treatments
- Imitrex Working / Worked
- Just started on the med. Dr. just upped the dose to 100mg and up to 200mg a day.
- Midrin Working / Worked
- It seems to work okay.
- Aqua Therapy Working / Worked
- I pour or soak my head in the tub and lay there with my head in the water and try to rest as quietly as possible.
- Prayer Working / Worked
- Just not moving and talking to God, letting him know exactly what and how I am feeling can help alot
- Crying Working / Worked
- As long as I don't move, it can relieve alot of pent up pressure and anxiety.
- Drinking Water Working / Worked
- Even though I get nausea,drinking water and stay hydrated really helps.
Open Chronic Fatigue Syndrome
I have Fibromyalgia with allergies and Chronic Fatigue. My life has changed alot,mostly I think for the better. Not with the pain and tiredness but with slowing down and realizing what is really important in my life, also it has helped me have a closer relationship with God. Without him I don't know what I would do, or how I would cope. He is my pressure release valve and with my hubby I can handle whatever comes my way.
Treatments
- Klonopin Working / Worked
- It works for my restless legs.
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Snapshot
Recently …
- 1 hug received
- 2 journal posts
- 4 journal comments
