Journal Entry for December 5, 2007
December 5, 2007 8:43am
Hi!
It has been a long time since I wrote.
Shelbie is doing well. She hasn't had a sz since 8/22. The doctor is weaning her off the zarontin. The …
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Journal Entry for September 4, 2007
September 4, 2007 8:20am
Hi!
Hope all of you had a good weekend.
Our central air went out on Sunday night. We did get it fixed yesterday. I could of waited until today, but …
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Hey you, I just happened to stop in and thought I would say hi. I'm soo glad that Shelbie is still doing great, Syd is as well! Hugs for you and Shelbie, and I guess for the boys as well! LOL j/k
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Big hugs for you, hope you are well x
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((HUGS))
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Hope all is ok with you? Bug hugs x
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Hope everything is going okay.
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Support Groups
Close Trisomy 18 (Edwards Syndrome)
My daughter Stephanie would of been 14 this year. She was born with T 18. Her life was short, but wonderful.
Close Epilepsy & Seizures
Shelbie is doing very well on Lamical. She is also on Depakote, zarontin, and topamax. She has been sz free for 5 mths. She is back to her loving self! I am so happy with her.
Treatments
- Depakote Working / Worked
- Did not work. I felt it started her to have absence seizures. She never had them until stating this.
- Lamictal Working / Worked
- This is the only med that has helped her. She has been seizure free for 6 weeks now. She started it in July and we have noticted a big difference the middle of aug.
Open Parenting 'Tweens (9-12)
I have a 12 yr old daughter who can be loving and kind, and than she can be a brat. I also have a 8 yr old son who is into sports.
Open Family Issues
Married my highschool sweetheart of 15 yrs. I have 3 children. 2 girls and 1 boy. My oldest daughter past away when she was 16 mths, my 2nd daughter has epilespy, and my boy is into sports.
Open Miscarriage
I lost my first child at 16mths due to tri 18. I mc my 3rd child at 9wks. I have a daughter 12 who has epilespy, and have a boy who is 8.
Open Bereavement
Type: Loss of a ChildI lost my 1st daughter to Trisomy 18. She was 16 mths when she went to heaven. She has been gone for 13 yrs, but there isn't a day that goes by that I don't think of her. I have also lost my mother-in-law. It was very sudden. She has been gone for 10 yrs now, but it is very hard to watch your children grow up without their grandma. She didn't get to meet her grandson, and her granddaughter looks just like her. My husband still has bad days. I guess you never get over losing someone.
Treatments
- Prayer Working / Worked
- I thank God everyday for the time I had with Stephanie. I know I will see her again someday!
Open Caregivers
I have cared for a ill child that has past away. I am now caring for my 12 yr daughter who has epilepsy.
Open Parenting Teenagers (12-18)
I have a 12 yr daughter. She was dx with epilepsy last year. She is having a rough time, but is pretty happy. She struggles in school big time. I am trying to help her with this. She starts the 6th grade 8/15. I am worried that her seizures will increase once school starts. She doesn't have many friends, but I am hoping she will have more this year.
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