My support network
June 13, 2008 3:05pm
Everyone needs a support network. Not just for the bad days but for the good as well. I am so blessed to have a super network. You …
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Sunni310’s Profile
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Sunni310
is feeling Bad
About Me
Retired Office Executive, on disability, my philosophy is This is only one day of my life and God is in control of it so why do I need to worry about it! I am passionate about my family and friends. Once said and done they are all that matter. I have learned to live for the moment and not for tomorrow. I plan my day each hour at a time. I have learned that if it doesn't get done or if I can't make that special outing it isn't the end of the world.
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Recent Activity
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Journal
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Is it going to be a good day or a bad day?
June 12, 2008 11:36am
I woke up this morning at 1:30 a.m and couldn't go back to sleep. I literally rolled out of bed and hobbled and tottered from the bedroom …
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Hugbook
Prayer
I pray that i find you in ease of pain today and that your day is good. Thinking of you hugs so gently Babs xx
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Flower
flowers for sunni hope you doing all right, gentle hugs my friend. Babs xx
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Hug
sending gentle hugs have a super day. xx God Bless you hun Babs xx
Hug
THANKS! You just made my day!
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Hug
Thank you, it helps me to know I am not alone. This world is cruel sometimes. HUGS to yu 2
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Photos
Sunni310 hasn’t uploaded any photos yet
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Support Groups
Close Rheumatoid Arthritis
About 2 years ago, I woke up one morning in unbelievable pain. I have fibromyalgia so I assumed I was having a flair. As the day went on I noticed that the pain was focused in both my thumbs and both ankles. By the time I could get an appt. with my Rhuematologist, I couldn't use my thumbs and could barely walk. My therapy included predisone to begin and Methotrexate. Relief was quick to come and now we are fine tuning the treatments.
Treatments
- Folic Acid Working / Worked
- I don't know what to look for to know if it is working or not. I take 3 tablets once daily. Any one know what it is supposed to do?
- Methotrexate Working / Worked
- I am self injecting once a week and home and have had no side effects. Though I do get nauseous on occasion. My doctor said I shouldn't since this formulation bypasses my stomach but I still do.
- Prednisone Working / Worked
- I used this primarily for my first flair. It worked quickly and thourghly
- Relafen Working / Worked
- It helps to manage the inflmation. No side effects noticed yet
Close Fibromyalgia
I am now 60 years old. When I was in my early 40's I knew something was wrong but my dr's only saw muscle spasms, depression and anxiety. In early 1989 I finally found a doctor who knew what I was talking about- tender spots, unexplained pain, fatigue, irritable bowel. Though no medical treatment was available beyond supportive treatments, today is a different day. I am taking Lyrica sucessfully and am looking forward to the future again.
Treatments
- Acupuncture Working / Worked
- worked really well but my insurer doesn't pay for it
- Aqua Therapy Working / Worked
- it worked very well
- Cyclobenzaprine Working / Worked
- if taken over time it becomes less effective
- Elavil Working / Worked
- i gained too much weight on these
- Heat Working / Worked
- sometimes it helps other times it just seems to irritate the area
- Ultram Working / Worked
- does work- haven't gained any weight from it- on the contrary it seems to be depressing my appetite- I have lost 20 pounds since starting Tramadol
Open Chronic Pain
Chronic pain is so elusive. How do you describe it. One minute it is here then it is there. The doctors don't know what to do about it so they experiement with different treatments. I would just like for one of them to say to me- I don't know what to do- let's work on this together!!!!
Treatments
- Chiropractic Adjustment Working / Worked
- didn't work for me- my alignment wasn't my problem
- Flexeril Working / Worked
- worked until my system became used to it and then it was't effective
- Heat Working / Worked
- sometimes it works
- Hydrocodone Working / Worked
- it worked wonderfully but I didn't function well at all on it
- Lyrica Working / Worked
- I have only been on it six months- finally got past the sleepiness and it seems to be helping very well
- Meditation Working / Worked
- surprising enough this does work sometimes
- Naproxen Working / Worked
- affected my stomach adversely
- Oxycodone Working / Worked
- worked very well but I felt out of control and I didn't like that feeling
- Physical Therapy Working / Worked
- never really worked for me
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Friends
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Snapshot
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