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sisterlulu’s Profile

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    About Me

    I am a newly diagnosed young onset parkinsons person. I would like to know more about getting, being and staying pregnant with Parkinsons. I want children very much and have decided to put my Phd on hold and start a family- given my situation- oh guess I should mention I am single &I just found a donor. I realize how difficult being a single Parkinsons mom will be but with faith and the right mind set I believe I can do it- any single parents with parkinsons out there? I would love advice, shared stories etc. I have never been married and now wonder - or maybe it is worry -I never will due to my PD. I guess I am ok with that otherwise I probably wouldn't be going forth with getting pregnant- no time like the present! I have incredible support from my family and friends- although I live a few hours drive from them. Nevertheless, I have support.

    Interests

    Geoarchaeological research, climate change research, geology, anything outdoors, rocks colecting, fossils collecting, hiking, biking, reading, soul searching, going to the beach. Spending time with my girls (meow)- spending time with my friends & family, digging in the dirt whether it be gardening, fossil or artifact digging. Traveling around the world and learning about new cultures- my next adventure is S. Africa in Sept-Oct. 2008(but a bit concerned about the plane ride and my ridgity/pain/stiffness),

  • Recent Activity

    August 12

    January 19

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    • Close Parkinson's Disease

      I am a single 38 year old woman. Recently diagnosed with young onset Parkinson's- although have been ill for past 8 years or so. Looking to educate and get support as much as I can. My main concern is the incredible pain and stiffness in my neck, shoulders and back. On a scale of 1-10 (10 being the worst) many days I would rate it an 11- And I have been told it will get worse with time. Good grief! I have significant muscle weakness on my entire right side and now it is starting on my left side.

      Treatments

      Flexeril Somewhat Helpful
      Hydrocodone Somewhat Helpful
      somtimes it helps, other times it does nothing and then there are the times all it does it make me feel sick to my stomach.
      Ibuprofen Not Working
      Requip Somewhat Helpful
      The Nausea is absolutley disgusting- and the sleep attacks are a bit irritating as well.
      Sinemet Working / Worked
      Some nausea but does seem to be helping as so I have a few to many hours straight that I feel ok

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