scrapcat’s Profile
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About Me
Have Fibromyalgia/Chronic pain now for 5.5 years. I also have IBS and intersticial cystitis(since I was 20) Had a 14 yr nursing career, upon which I got injured in 2003 and the pain has never left. I haven't worked now for 3 years. Struggle daily just to get the basics done around the house. Have a hard time getting out to do shopping (which I absolutely hate now) but my husband runs his own company and works long hours, so I do try to get the shopping done. I recently met a girl here in Hawaii who also has fibro and its nice to know that I'm not alone in the daily pain struggle and lack of sleep etc...Hoping to meet some new fibro friends...
Interests
Cardmaking, scrapbooking, papercrafting, jewelry making, reading, movies, meeting new fibromyalgia friends...and I Love my husband, 3 cats (Leo, Precious and Indy) and family.... I would love to start a mini garden, do more cards and Do a cross stitch project I got recently, but its one day at a time... Especially with chronic pain. Everyday is a new day..
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Journal
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Hugbook
Hug
Good evening..wanted to say hi..seems like you have alot going on and some pretty serious pain..i hope the med change helps..loving hugs to you..
Hug
As we share the same pain. May we understand that our love for one another can heal places that are unseen. Have a great day. love Joy
Hug
Hi there. Thanks for inviting me to be your friend. I'm not online alot anymore, so please bear with me. I've always thought Hawaii would be a great place to live if you have fibro, but I guess you're proving me wrong on that theory, huh? Have you lived there your whole life? I'd like to see Hawaii some day. The plane ride over though would kill me, I'm afraid. LOL. Anyway, it will be nice getting to know you. How are you doing today? I just got up a while ago. I'm meeting a friend for lunch at noon and then going to physical therapy. PT, the right kind of PT, has helped me the most with the fibro. I also go to a pain clinic and take methadone for the pain - since I've been going to PT though I've been able to decrease my dose on methadone which makes me very happy!! Have a great day, new friend. Deb
Present
Hi natasha thank you for the flowers sending you a present of hopefully filled with some pain free days and much happiness. Take care always gentle hugs Emerald
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Hug
Hi natasha happy to have been able to brighten your day. Hope today was a good day for you and wishing you a good nights rest tonight. take care always gentle hugs Emerald
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Photos
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Support Groups
Close Fibromyalgia
Treatments
- 5-HTP Working / Worked
- it helped and I use this to assist with sleep
- Acupressure Working / Worked
- I did have this done and it did work, but wasn't long lasting effect.
- Acupuncture Not Working
- Worked at first... but then was too painful to continue using
- Aqua Therapy Not Working
- Tried this and it made my back worse
- Cyclobenzaprine Working / Worked
- using now with 2 other mucle relaxants
- Cymbalta Not Working
- Had a reaction to...
- Effexor Working / Worked
- working
- Elavil Not Working
- Had a reaction to...
- Guaifenesin Not Working
- didn't notice a difference at all
- Heat Working / Worked
- Helps a lot
- Lyrica Not Working
- Had a reaction to...
- Morphine Not Working
- Tried but didn't like the side effects..
- Neurontin Not Working
- Had a reaction to....
- Oxycodone Working / Worked
- I take 15mg (immediate relief Q6hrs for pain and so far it works with the oxycotin
- TENS Working / Worked
- Use this on and off as needed...
- Ultram Working / Worked
- Use now... helps alot, at first I didn't like it but I gave it a chance and now it helps...
- Zanaflex Working / Worked
- I use now and it works
Close Chronic Pain
Hello, I'm new to this site as of today. I have chronic pain from Fibromyalgia all over my body. I am no longer working as a registered nurse. I have been out of work for 3 yrs now. I would love to meet some new friends who also struggle with the daily chronic pain.
Treatments
- Cymbalta Not Working
- Had a reaction to...
- Flexeril Working / Worked
- Use with 2 other muscle relaxtants
- Heat Working / Worked
- Use it daily. Found this really great moist heating pad... well worth the $60.00 ... on my second one now.
- Hydrocodone Working / Worked
- Use with my 3 muscle relantants...Flexeril, Soma and Zanaflex
- Lyrica Not Working
- Had a reaction to it.
- Meditation Working / Worked
- Have tried it and it helps when your in pain...
- Mobic Not Working
- Tried it, didn't do much
- Morphine Not Working
- Tried it, but didn't like the side effects from it...
- Naproxen Not Working
- Tried it, but it didn't do much- plus ended up with nose bleeds
- Neurontin Not Working
- Had a reaction to..
- Oxycodone Working / Worked
- Use the immediate relief 15mg Q 6 hrs and the Extended relief 40 Q 12 hrs and it works so far,
- Physical Therapy Working / Worked
- Worked at first after the oringinal injury, worked another 1.5 yrs in pain, then was out of work and had therapy again, but it just caused too much pain
- TENS Working / Worked
- Have this for 5.5 yrs and it works, use it off and on..
Open Interstitial Cystitis (IC)
Hello, I am new to this group. I would like to say hello to everyone and say that I too have IC since I was 19/20 yrs old. Was diagnosed at that age, but had the signs and symptoms for a year or more before that. I don't know of any good threatments available, besides the Pyridium which I have all the time on hand 200mg... and of course a heating pad and/or ice pack. Would love to meet other who also have this syndrome and ... I also have fibromyalgia now for 5.5 yrs and of course IBS...
Treatments
- Bladder Distention Not Working
- Had this done too, for diagnosis
- Bladder Instillation Not Working
- Had it done, for diagnosis...
- Pyridium Working / Worked
- I have been using 200mg of pyridium since I was 20 yrs old. It seems to help when I have a flare.. I guess...
Open Diets & Weight Maintenance
Treatments
- Alli Considering
- I have this but not sure if I should start
- Counting Calories Working / Worked
- Did this with weight watchers and it worked
- Eat Less Working / Worked
- Did this with Weight Watchers
- Hoodia Working / Worked
- not sure if it worked?
- LA Weight Loss Not Working
- Didn't work, had to much pain to try to eat ... properly.
- Physical Exercise Not Working
- Have chronic wide spread body pain, so unable to exercise at the moment.
- South Beach Diet Working / Worked
- Had some success, but couldn't stand not having chocolate or sugar... ended up grouchy, irritable,.. Also don't eat that type of food normally.
- Weight Watchers Working / Worked
- Worked lost 40 lbs about 3 year ago... then went off it got married had steroid injections and ended up gaining weight...
Open Back Pain
Treatments
- Acupuncture Somewhat Helpful
- Bedrest Somewhat Helpful
- Carisoprodol Working / Worked
- using now
- Cortisone (Injection) Somewhat Helpful
- Flexeril Working / Worked
- using now...
- Heat Working / Worked
- Use a super moist heating pad
- Hydrocodone Working / Worked
- using now
- Relaxation Somewhat Helpful
- TENS Somewhat Helpful
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Snapshot
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