stoma caps worked
June 8, 2008 7:45pm
So I was able to hang out by the pool and go swimming for a little while. I did, however, have to go the bathroom @ the pool about every 45 minutes …
NaomiLI’s Profile
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NaomiLI
is feeling OK
About Me
It's been a tough road this past year and im grateful that there is support from other people out there who can relate. If anyone has any kind of questions that they think I might be able to answer, please feel free to ask...I hope I can help. I also have stoma pics if anybody wants to see what one looks like, if u don't already know.
Interests
Music, concerts, hanging out w/ family & friends, trying to get some exercise, reading books and magazines on spirituality and philosophy.
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Recent Activity
Monday
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NaomiLI changed their mood to OK 10:26pm
August 9
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NaomiLI changed their mood to Good 12:57am
August 5
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NaomiLI replied to JEAN97’s discussion post CAN WE EVER GET A BREAK? in the Crohn's Disease & Ulcerative Colitis support group 2:06pm
I guess all I can say is hang in there. I understand getting to a point when u r just totally fed up…
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NaomiLI changed their mood to Bad 1:57pm
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NaomiLI changed their mood to Good 1:57pm
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Journal
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stoma caps
June 7, 2008 12:37pm
It's about 90 degrees in New York. My first really hot day w/ having an ileostomy bag. Me and my sister want to go and hang out by the pool …
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Hugbook
Hug
Hey Naomi thanks for the inspiration :) I'm taking it one day at a time and trying to make the best of it! Hope everything is going good with you.
Hug
Naomi, Thank for the hug! I am taking it one day at a time. It's hard to live with such a horrible disease/illness. It wasn't our choice to get this... not something we did right or wrong.... my advice I got from her (ex g/f) was that I need to find someone who has Crohn's Disease, and knows what it's like to go through this --> which makes sense, but not enough to see why she wanted to be in a relationship with me in the first place. Anyways... this is getting too long. I wanted to say thanks!!
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Hug
I've had a colostomy bag since my accident back in 01. It's so tough dealing with something like this. I can't believe you went swimming :) That takes guts I'd never be able to get enough gonads to do that :) lol.
High Five
I am proud of you & impressed that you had the strength to out to the pool and actually swim with your sister. That's awesome!!Keep it up.
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Hug
You deserve many hugs just for all that you have endured.
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Photos
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Support Groups
Close Crohn's Disease & Ulcerative Colitis
I was diagnosed w/ ulcerative colitis in March 2006. I had to have my colon removed last year. Right now, I have an ileostomy bag but am hoping that it's not permanent (pending surgery in the near future).
Treatments
- Asacol Somewhat Helpful
- I was put on asacol when I was diagnosed in March '06 and for the most part, it kept the uc under control. There were some minor flare ups up until the uc got so out of control that no meds were helping and I had to have my colon removed.
- Dietary Modification Working / Worked
- After surgeries, I was put on a low fiber/low residue diet to avoid abdominal cramping or blockage. Gradually, I was able to introduce more foods into my diet.
- Lomotil Working / Worked
- It does help to slow down the amount of times you have to go to the bathroom. I was on this after I had the restorative surgery(j-pouch). Side effects is that it makes you tired after taking it for awhile.
- Prednisone Working / Worked
- It did help to slow down the bathroom visits during my severe uc flare up but ultimately did not get the disease into remission since I ended up having surgery. Side effects included a crazy increased appetite and mood swings. I wasn't quite myself at times.
- Probiotics Working / Worked
- I have been taking acidophilus pills for the past couple of years to aid in digestion and help keep yeast infections away.
- Surgery Working / Worked
- I had my colon removed in Sept 2007. I had an ileostomy bag until Jan 2008 when I went in for the restorative surgery so that I would have a j pouch instead of the bag. They found an infection in the j pouch in April so I went back for surgery so that infection could be treated. Now, I have the ileostomy bag again and I'm hoping to go for another restorative surgery at the end of the summer. Side effects were soreness, lack of physical strength, significant weight loss and emotional stress.
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Snapshot
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