Creativity overload
August 5, 2008 2:31pm
Sometimes I get these urges to do something creative, and I will spend a whole week making cards, scrapbooking, writing poems, etc. This has been one …
Progress
55 %
Issamae’s Profile
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Issamae
is feeling OK
Allergies! I keep having asthma attacks, because I forgot my algergy meds. The asthma meds have made me shaky...
Recently: 4 hugs given, 2 hugs received more …
About Me
I am a 30 year old, full time administrative assistant, and I have one child. I have Narcolepsy with Cataplexy, which began around age 11, although I wasn't diagnosed until age 18.
Interests
I love to cook, organize things, and scrapbook!! I am a domestic goddess, when I have time, and the rest of the time, I am just sleeping beauti. (just kidding.) I am also a major smart-a**, especially when my meds wear off. I love to write, mostly poetry, but also just about anything. I am very artistic, and I am kinda grouchy more than I should be.
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Recent Activity
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Journal
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The all elusive "good night's sleep"...
July 22, 2008 5:48pm
You know, it is amazing what a good night's sleep will do for a person. I usually average about 5 hours (collectively) of crappy sleep per night. …
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Inspired by lyrics
July 21, 2008 4:36pm
I am frequently reminded that sometimes pain and trial are blessings in disguise. I listen to songs, (good songs, not what frequently passes for …
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Holy Crap it is HOT!!!
July 2, 2008 11:45am
Seriously, this fat girl is melting. Literally. I have lost 6 pounds since last Tuesday, and I haven't changed a single thing about my life. …
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Using my "up" times to prepare for the "down" times..
June 26, 2008 12:10pm
Ok. So I have started using my "up" times to prepare for my "down" times. I know that everyone has them, and I hate feeling like …
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Hugbook
Hug
Thanks issamae. I also vomit when I am stressed. Deep breathing, relaxation tapes sometimes aren't enough to settle my stomach.
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Hug
Hope your allergies improve. Try local honey (made from local bees) as it helps with hayfever.
Hug
If there was a 'you rock!' hug I'd send that one. Thanks for your poem, and thanks for understanding! Can I print it out and show it around??
High Five
Good job on the poem! Well said.
Hug
I know what you mean...when i wanna do pretty much anything w/ my kids i have an attack so i am afraid to watch them!!!
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Photos
Issamae hasn’t uploaded any photos yet
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Support Groups
Close Narcolepsy
Geez, 500 characters is not enough..I have narcolepsy with Cataplexy. I was diagnosed when I was 18, although I was told that my first neurologist should have seen that I had it when I was in the 4th grade. Things that really bother me about Narcolepsy w/ Cataplexy: 1. I can't drive. (they would give me my license, but I have a condition which compromises my focus, which means I have no business behind the wheel.) 2. I am tired all the time, even with the medication. (the meds could kill my liver too, and have made my blood pressure on the high side..I don't like that either) 3. I have WICKED nightmares (the hypnogogic hallucinations..need I say more?) 4. I can't watch anything funny unless I am sitting down, and even then, I am taking a gamble..(cataplexy at its finest.) I haven't found anything that I LIKE about being this way, except to say that I don't have insomnia..ha ha ha.
Treatments
- Dexedrine Working / Worked
- I have been taking Dexedrine for 8 years, and it WORKS. Has some bad side effects (High BP, jitters, dry mouth, etc.) but I can't function without it.
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Snapshot
Recently …
- 4 hugs given
- 2 hugs received
