Nikki10’s Profile

Close Crohn's Disease & Ulcerative Colitis

I was dxed with Crohn's when I was 11 yrs old. Ive been in & out of the hospital too many times to count. Ive tried about every medication that I can, and unfortunatly Ive had a bad reaction to all of them. The reaction I had on 6MP was life threatening. Ive never had surgery and hope to keep it that way. Im on a limited diet, and I cant do much physical activity or I get sick..

Treatments

Asacol Working / Worked

It worked really well for maintaning my remission Side effects: hair loss I had a very rare reaction to it, It dropped my platletts and so I had to be taken off of it... I just got put back on it again, very nervous >.

Avoid Certain Foods / Chemicals Working / Worked

As long as I stay away from the foods and drinks that bother me, It works better than any medicine I've been on.

Calcium Working / Worked

I cannot have dairy so this is a great supplement for me

Cipro Working / Worked

This worked for me well to treat an infection I got when I was first diagnosed

Dietary Modification Working / Worked

I've had to make a lot of dietary modifications! Annnd it works well.

Entocort Somewhat Helpful

I kind of worked for me. Not as well as prednisone. Side effects: Mood swings It only works sometimes depeneding on what part of my crohn's is flareing. I am currently on this med again to help my inflammation in my colon

Fish Oil Not Working

It doesn't hellp.

Flagyl Working / Worked

It worked to help treat me.

Prednisone Working / Worked

Worked the best Side Effects: mood swings, moon face, depression, weight gain, didn't sleep well while on it, water retention, ate ALL the time. I hate it, and I feel the side effects out weigh the benifits.

Prevacid Working / Worked

I was on it before and it took care of all acid reflux. Went off of it for 3 years, am currently back on it and its helped a great amount.

Prilosec Somewhat Helpful

Wasn't a high enough dose so I had to switch meds.

Probiotics Considering

I don't know if this has worked or not. But I have been taking it for a year now.

Purinethol Working / Worked

Worked VERY well for 4 years. I had a very bad reaction to it. I went into the ER and found out I had NO immune system and had a severe infection. Put in reverse isolation for a week and then had to be isolated at home for 2 months to replace my immune system. I cannot be on it anymore.

Remicade Working / Worked

Kept me in remission for 4 years. I had an allergic reation to it 2 years ago and so I cannot take it anymore. Side effects: joint pain, headaches after infusions for about a week

Close Cystic Fibrosis

I don't personaly have CF, but my boyfriend has it. It's very hard for me to know hes struggling to breathe, or just doesn't have energy to do normal things. I feel so helpless and I hope being a part of this group will help me be there for him and help set my mind at ease!