Still Trying to Do What I Use To Do
May 21, 2008 7:30pm
This has been some week. Since I finally have my meds under control again, I figured they are going to put me back where I was at before to a …
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JanetJ’s Profile
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JanetJ
is feeling Excellent
About Me
I am a 47 year-old mother of four recently diagnosed with COPD. I have previously been diagnosed with sarcordosis and more recently severe asthma. Until a few years ago, I worked in the legal administrative field. I like reading, bowling, and travelling.
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Journal
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Do they see me differently now that I have been diagnosed with COPD?
May 18, 2008 9:51pm
I recently celebrated my 47th birthday. It was the most different birthday I've had in a few years. I spent most of it in bed …
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Hugbook
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Hi Janet I read your post and wanted to see how your doing I have sarcod. in my liver and eyes and have had it for 23 yrs Hugs..Caroline
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Janet, I felt so much like you do about a year and a half ago when I was diagnosed. My need for info was huge! There are several websites that are very helpful, and I found that the mayo clinic site was the best to start out with. Also, read the discussions in our group and nose around on some members profiles. Read journals, and everything you can. Regarding exercise, start small. Do you have a pulmonologist? Ask him if there's a pulmonary rehab program nearby. They would get you started on an exercise program designed just for you, and also teach you so much about this disease. Everybody's experience is a little different, but we can learn a lot from our friends. So as you surf around the DS site, pick out a few people and send them a hug, and ask them to also be your friend. The more the merrier. Anyway, I'm rambling. I hope you'll have a good day tomorrow. Take care! Hugs, Sue
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Hi Janet, and welcome to DS! I read your journal, and can really relate. Having the COPD diagnosis was such a shocking change for me, too. I used to be the exec director of a non-profit, and worked myself too hard. But I have to take care of myself now, and you do too. Please let me know if there's anything I can help you with. Hoping tomorrow's a better day. Hugs, Sue
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Support Groups
Close Asthma
Over the last 3-4 years,I have been experiencing asthma symptoms and consequently treated by a phyisican. I was upgraded to "severe" asthma in addition to being diagnosed with COPD (I failed to mention that I have sarcoid as well). I am running with a full deck of respiratory malfunctions and trying to get help to learn more about each of them. I am now at home with 24/7 oxygen. Informtion makes me feel much better. Being in the dark and not knowing what's in store for me is nerve wrecking.
Treatments
- Advair Working / Worked
- Don't like what it does to your teeth, mouth and eyesight (side effects). Just learned that rinsing your mouth out after inhaling is a necessary thing to do.
- Albuterol Working / Worked
- At first it was the only med. I was taking and it seemed to help. Then it was not enough, I needed more meds to get through.
- Breathing Exercises Working / Worked
- Just must remember not to panic. Takes awhile to feel the effects.
- Inhaler Working / Worked
- I am using three (combivent, advair, and spiriva). They work
- Singulair Working / Worked
- Replaced my prescription claritin. I just don't like having to wait until evening/bedtime to take it. It does help with getting to sleep.
- Xolair Considering
- Had the blood test done. Awaiting results and return to my physician. What can you tell me.
Close Sarcoidosis
I was first diagnosed about 15 years ago (lungs). I never got a lot of information about it. Lately with my new dx. (COPD) it has resurfaced. It had been in remission I guess. It started out feeling uncomfortable and pain waking me from sleep. After a million test, never a biopsy, that's what they said. I don't know any more than that really. Can someone help me to understand more?
Treatments
- Prednisone Working / Worked
- hate the weight gain, hump in my back, fat face. But breathing is good thing to trade all that for.
Open COPD & Emphysema
I am a 47y.o. mother of four recently dx. w/COPD. Have had asthma upgraded to severe. Hospitalized 3 times this year, first ever. Seem to be all going south at the same time. Sarcoid as well. New to treatment. Your note helped me to understand which med is for what. My doc seems to be hurried most visits and I can't seem to remember any questions at the time. just starting to take a more active part in the process, I am seeking info. from every source possible. What is a bronchodialator?
Treatments
- Advair Working / Worked
- just upgradd to the 500 dose. Works better now that I learned to rinse after. I believe it has affected my eyesight. I haven't proved this yet.
- Albuterol Working / Worked
- worked at first, in the end wasn't as effective.Bad taste and dry throat.
- Combivent Working / Worked
- better than albuterol alone. Don't use as often.
- Spiriva Working / Worked
- just started and love it.
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Friends
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