tlg044's Journal

I am now officially a Lifer Mood

Friday, July 18, 2008

Just got back from the Hematologist. I now am a Lifer. Warfarin for life that is. Her rational is that my DVT was so severe & caused so much damage that there really is no reason to risk another one. Said that it is a quality of life issue. Since my life was so disrupted and changed by the first clot, what would a second one do to me? She is adding this to the Vascular's opinion that I am at a very high risk for reoccurrence because of the compression of the vein (by the myoma?). She said that she is not convinced that the myoma caused the clot and tested me today for 2 rare disorders (among other things) that may be the culprit. Can't remember what they were called. But I guess at this point it really doesn't matter what the cause was/is and really no need to do the genetic tests. She can't do them while on Warfarin. If I am going to be on it for life does it really matter why I had the first clot?

We discussed the option of putting in a filter to prevent the risk of a clot traveling to my lungs or brain. This had been suggested to me as a safeguard while off the anticoagulants. She is against it, for me anyway. Says that it is a foreign object in the body and could cause a larger clot, and would not prevent clotting elsewhere in the body (brain or lungs). Makes sense. So as of now I am on Warfarin for life.

I need to follow up on the cysts and the myoma with the Gynecologist. I have an appointment for the 23rd. She will go over the results of the ultrasounds and the CT scan. Then decisions will be made what to do about those, if anything.

All in all, not horrible news. I pretty much knew that, I guess. It is much better than worrying when I would have another clot and suspecting every twinge or bruise. I am in pain from the original clot so how would I really know if I had a new one in that leg? I hate the stuff and suffer from side effects but with my "luck" I am better safe than sorry

Hug tlg044

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Comments

I fully understand your decision,I too could had gone OFF the anticoagulants, but listening to my hema's explanations as to what MY SITUATION was, I'm better ON them then OFF, easier on my mental health also.

dero