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Just wanting to vent some frustrations. I feel like I do pretty well with my heart condition.
I work full time and about 4 days out of the work week I go home and cook supper. I don't do much housecleaning during the week, since I am pretty much exhausted by the time I cook and clean up the kitchen. But I feel like my family and friends just don't understand that I really can't do more than I do. They make me feel guilty that I don't do more. I know that I shouldn't worry about what they think, but they have me thinking that maybe I am just lazy. I have made sure to tell them that alot of people with my condition doesn't work at all and is on disability, but that doesn't seem to phase them.
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Hey, I know what you mean, I have dilated cardiomyopathy with an EF of 20%, I'm 31. I get that sometimes from some friends and sometimes from my husband. My family is really pretty supportive though. People have NO freaking idea how we have to drag ourselves to do anything! I'm sorry, if you want to talk let me know, I've had mine for 5 yrs and tried to work the whole time also.
mandara