Progress
35 %
Goal End Date is Dec 31, 08 179 more days.
JoseeFN’s Profile
-
JoseeFN
is feeling OK
About Me
I am one of those people who thought that illness only happend to others. I have a terrific husband and two wonderful teenagers. I am a lawyer in private practice for 18 years. I worked very hard and cared a great deal about my clients. I was diagnosed with MCTD in early 2007 and have been off work since then. Although they were very bad at first, my symptoms seem to be under control. The disease has affected my lungs and heart and I am scheduled to start chemo soon. I am scared!
-
Recent Activity
Today
-
JoseeFN replied to erarebirth’s discussion post Roll Call July 5th! ^_^ in the MCTD support group 12:22pm
Hello everyone! Just got back last night from medical appointments at the Toronto Western Hospital. CT…
Monday
-
JoseeFN gave PolarBear427 a Hug 11:17pm
My thoughts are with you...so sorry you're feeling so ill! I'm heading for Toronto in the morning for…
-
JoseeFN wrote a discussion post in the MCTD support group: Roll call for June 30th 9:15am
Good morning everyone! Last day of June...last day of rain? Sure hope so! I was right about the mall...I…
Sunday
-
JoseeFN gave lisa57zz a Hug 5:41pm
Thinking of you and hoping that your day is going well. Gentle hugs! Josée…
-
JoseeFN gave Catalyzt a Hug 10:08am
Hi Cat! Sorry that you are feeling down...I will keep you in my thoughts. Someone once told me and I…
-
JoseeFN gave dallas2 a Hug 10:00am
Hugs to my Canadian friend! Happy Canada Day weekend and try not to let the pain get to you OK? Josée…
-
JoseeFN replied to dallas2’s discussion post roll call june 29th in the MCTD support group 9:59am
Good morning everyone! Another day of rain...big surprise! Oh well, we can't do anything about it so…
June 28
-
JoseeFN gave lisa57zz a Hug 3:16pm
Vent away Lisa! It's OK to feel angry especially when we see this disease affecting our children! You're…
-
JoseeFN wrote a discussion post in the MCTD support group: Roll call for June 28th 8:48am
Happy Saturdy everyone! Rain in back in Northern Ontario and it plans to spend the weekend with us! Too…
June 27
-
JoseeFN replied to their discussion post Roll call for June 27th in the MCTD support group 9:53am
Good luck with your mammogram...I wouldn't have clue about how it feel to be told "you have big…
-
-
Journal
This entry is private
This entry is private
This entry is private
This entry is private
This entry is private
-
Hugbook
-
Hug
Good-Morning.........Hugs and Prayers,Lisa
-
Hug
Wow, I just checked in and saw your hug ... thanks I needed one. Doc is going to continue tapering me off of morphine while adding Opana. I will start my next taper in a couple of days. I think that is what is going on with my pain levels. Plus I had to wait over an hour in waiting room, grrrr! The heat is getting to me too. I'm headed for bed here shortly. I'll be keeping you in my thoughts and prayers tomorrow as you go through your tests and appts. I take methotrexate shots twice a week, it is a chemo. Is that what they may be suggesting for you, or will it possibly be something more rigorous? I hope you don't mind my asking. Either way, I would be a little scared if I were you too. You are right though, at least you are headed towards improvement. The MTX makes me feel yuck for a couple of days, but it would be much worse without it! Hubby is doing better, thanks for asking. He had a physical last Thurs and blood tests, etc. came back great. Haven't heard about chest x-ray yet (he smokes). Doc seems to think he had a virus. Anyway, you are so sweet to think of us and I truly appreciate it!! Love-N-Hugs, PolarBear
-
Hug
And a hug and happy canada day to you also!! Pain is a little better today. Tolerable. Had a nice walk and all the lilacs are coming out now.The suns shining too!!!!!! hugs marilyn
-
Hug
Thank you my sweet friend for understanding.Hug and Prayer,Lisa
-
Hug
In Responce to your hug yesterday,it is "((NOT))" a 'decent compromise',sitting on my bed, talking to me.. she'been through 10 + years of this lupus/mctd with me.. never gets to go and do the things children/ teens like to do,it's VERY UN-FAIR. My family will not help us or give any support.My Father is spending the summer doing fun things with the other grandchildren,taking them to get ice cream,swimming,day trips to where ever and on vacations....ect.... No it un-fair. Sorry for venting i'am having one of my, ""hate this lupus"" day!!!!!!! Hope you can understand.Hugs,Lisa
-
Photos
-
-
Support Groups
Close MCTD
I just joined Daily Strength today. I have MCTD (diagnosed in early 2007). I was a very active wife, mom, lawyer, partner in my law firm, practising for over 18 years. At first, the disease took over my entire body and causes damage to my lungs and heart. With medication, the symptoms are mainly under control but the didease has resisted treatment so far. My lungs continue to deteriorate, although not at an alarming rate..so far! I start chemotherapy soon. I am scared!
-
Groups
