Kylie5723’s Profile
-
Kylie5723
is feeling OK
"I know God doesn't give us more than we can handle, I just wish he wouldn't trust me so much". -Mother Teresa
Recently: 18 hugs received, 8 hugs given more …
About Me
I'm a 24 years old and currently a college student majoring in Computer Programming. I was diagnosed with Lupus SLE about 5 years ago and currently find myself struggling with a aggressive flare up after 4 years of being symptom free. But I try not to let my condition run my life. I consider myself to be a huge dork and I laugh at inside jokes that even I don't get sometimes! I have an odd sense of humor and can be very blunt sometimes but thats just who I am. : ) I'm the single parent of identical twin daughters who will be starting school this year (!!!) and I have an identical twin sister- thats right, we do everything in pairs!
Interests
Shopping (of course), computer tech stuff, Hip Hop, R&B, my two lovely daughters, MMORPGs, coffee, sleeping in, youtube.
-
Recent Activity
- Sorry, there is no activity in the My Activity feed.
-
Journal
This entry is private
This entry is private
This entry is private
This entry is private
This entry is private
-
Hugbook
Hug
Yesterday brought the beginning, tomorrow brings the end, and somewhere in the middle we became good friends. Have a great weekend! Hugs Nancy
Hug
Great wedding pics. You are a great friend to be a bridesmaid.. it's so much work. I've done it 5 times.... or more. Keep well.. your girls are beautiful.
-
Hug
A good friend is a connection to life - a tie to the past, a road to the future, the road to sanity in a totally insane world. Happy Thursday, Hugs Nancy
Hug
Finally got to look at your wedding pictures, you looked just beautiful. Beauty and brains, the men will be knocking down your door if your not careful. I do love your sense of humor and look forward to all your journal entries. Thank you for being my friend and I am so proud to call you a friend. Hope the heavens smile upon you.
Hug
Where you been??? Just droppin in to say HI!!!
-
Photos
-
-
Support Groups
Close Lupus
Was diagnosed with Lupus in 2003 after a year of unexplained kidney problems. Everyday holds new challenges for me, I'm just trying to make it through to the good days that are ahead. I will never say I suffer from Lupus, it will never have my life. I'm hopeful that one day I can find a medication that controls my flare ups without sending me into an allergic reaction! Until then...I'm just hanging out in this crazy world trying to prove myself and making each day count : )
Treatments
- Cellcept Too Soon to Tell
- Will start tomorrow
- Cyclophosphamide Somewhat Helpful
- Had 5 treatments in 2004, hard to say if it worked. No real side effects aside from fatigue and swelling in my legs. Kidney function and flare up improved shortly after I stopped treatments.
- Methotrexate Working / Worked
- Took 7 pills a day for a year or so, was taken off after my lupus was in full remission.
- Plaquenil Not Working
- Tried this drug twice (last introduction was only 50 mg/ day) but caused severe allergic reaction both times. Drug rash all over my upper body and face, quickly discontinued the medication both times.
- Prednisone Working / Worked
- Works but I only take it for flare ups now. Side effects are too rough for me to handle.
Close Parenting Big Kids (5-8)
I'm the single mother of twin girls who are starting school this year! I'm just trying to find balance in this crazy world the best I can : )
Treatments
Open Sjogren's Syndrome
Kylie5723 hasn’t entered any details for this support group.Open Breakups & Divorce
Kylie5723 hasn’t entered any details for this support group.Open Healthy Relationships
Kylie5723 hasn’t entered any details for this support group.
-
Groups
-
Snapshot
Recently …
- 8 hugs given
- 18 hugs received
- 1 journal post
- 3 group discusson replies
