Chandler's Story
May 14, 2008 3:10pm
Chandler Hope Hurley was born full term at 4 pound 10 ounces. Right from the start she had issues with feedings and failed to put on weight. She was …
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ChandlersMom’s Profile
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ChandlersMom
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About Me
I am the mother of 3 daughters, my youngest has just been diagnosed with Mitochondrial Disease. I am begining my quest to learn, netowrk and advocate for her the best I can. I appreciate all personal stories shared, advice given and prayers prayed. I look forward to hearing from anyone who can help me. This is all very new to us and very overwhelming!
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I am here if you need me. we need all the support we can get. love, laurie
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Close Mitochondrial Diseases
My daughter Chandler has been recently diagnosed with Motichondrial Disease. We are going back for more testing to determine the exact disorder but are very new to this and in search for as much information as possible. The Geneticist did say he was going to start her on Carnitor and CoEnzyme Q10. I have been researching this since the first time I heard the word but have found I am learning more from personal stories than anything else. I look forward to networking with you.
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