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I have not been around much lately and I know some of you are wondering. I just have not been able to talk about it, or in this case write about it. I am just so unbelievably depressed right now. What the deal is, is that I have uncontrollable body shakes. This is more than likely a result of so many years on heavy meds. Some doctor's say it is psychological. My Psychologist does not nor does my nuerologist. The shakes are so bad that I now shake 24/7. No meds help anymore. I take 3 meds to sleep at night yet I wake up about every hour shaking. I have not slept through the night for months. I am on a new med, clonozapan. When I take that I sleep better but still wake up very often but am so drugged all day that I sleep on the couch until about 3 or 4 in the afternoon, again waking up about every hour but not having the energy to get up. I try to sew or craft or do something, anything to help my depression but I am just unable to do anything. My Psychologist has been saying for over a year that I should go to the Mayo clinic in Phoenix. I am not even able to make that phone call, so he called them today and explained my situation. They have a clinic that is called "Parkinsons or shaking body sydrone clinic". He was thrilled to learn about the shaking body syndrone clinic becuase that means there is such a thing. He talked to one of the doctors and they agreed to study my case. I need to have all my medical records (18 years of records) to them. Once they receivce them, a panal of doctors will read them and decide if I should go see them for evaluation. If they agree to see me, they will study and evaluate me from 3 to 7 days. I have already talked to my lawyer and they will start copying my records on Tuesday and hopefully get it done next week. I will be getting copies of my xrays ready.I really feel like this is my answer. I am praying hard that they agree to see me and evaluate me. I cannot go on like I am right now. My Psychologist saw that today and is doing all he can do to help me.Thank you all too for your support.Mary Lou
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I hope and pray that you will be able to get into this clinic. There is your light at the end of the tunnel!!!
Hugs,
Gabby
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I pray that you will have the answers you want. I am hear if you need to talk.
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i am so sorry you are having to go through this angel. No one should have to suffer like this. I know it does not feel like it, but God is with you. I am praying for you that you find some answers. let me know how it goes. xxx nancy
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Oh my love , i am so sorry to read that you are going through such a rpugh time of !!......hopefully you be able to go to this clinic and get it sorted out !!!...i will keep you in my prayers and thoughts God bless loads of love and hugs Ellie xxx
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Baby Girl...what is going on? WHY would anyone have to suffer like this? Did you get off a med lately? Something you were on for a while/ are they detox shakes/ Lord God please take her pain away, NOW- i ask thru Jesus Christ our Lord.
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So glad that your Dr. called Mayo and I pray that everything will go well. Hang in there. Remember...God is in control.
Hugs,
Carrie
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Mary Lou I am very relieved that you are going to the Mayo Clinic if anyone can help you out I think it's them.. I feel awful also that you are so so depressed and please anytime contact me and vent away, that's what friends are for...BIG HUGS :)
To my DS friends. I have not been around much lately. For this I am truley sorry. I hope to be back soon. For now, depression has taken the best of me and I am just unable to get on and try to encourage others. I feel so bad that I have not been able to do, and I think of you all several times a day, just cannot get myself to get on here. The fact that i got on to write this is a big step for me. Please bear with me and i will be back to communicating with you all just as soon as I can.
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I am here for you kiddo...you are not alone...you were always here for me so let me repay by being here for you as well
Past Entries
Goal Updated
Cute!!!!!!!
gabbygal
Isn't that funny!! Look at you. You made it to the sight....you haven't uploaded an avatar from there, but you figured out how to post a link!! That's something you can show me how to do!!! Even though you're cracked! lol
Hugssssssssssssssss
DarlaC
I love this saying..how VERY true huh? Big hugs :)
marsmama
Oh Mary Lou, That's the spirits my friend, you are getting your since of humor back. Now that's and positive thing, indeed. Welcome back! Love Bunches!
Rebeka56