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OhPixel’s Profile
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OhPixel
is feeling Good
About Me
newly wed, animal lover! i enjoy sewing, paper craft, & riding horses. i stay home with my 2 dogs, 2 birds & 1 cat.
Interests
in order: dogs, horses, cats, birds & rabbits. every other animal follows after those. i love training & caring for animals; i miss my work in the veterinary field dearly. i do a lot of crafting with paper (cards & letters) & whatever i can crank out on my sewing machine. usually my projects are small & animal oriented: cat toys, winter coats for my small dog & blankets for all! my husband, pets & family take first place in my life. i am still pulling through only with their support.
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Journal
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Hugbook
Hug
thanks!!!!
Flower
Thanks!! I also work 25 hrs a week :)
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Hug
Welcome!!
Hug
Welcome to the group!! From Jeni at http://www.msmagnet.org
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Photos
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Support Groups
Close Multiple Sclerosis (MS)
Type: Relapsing-remitting MSi woke up at 4am one morning, 3 years ago with exactly half of my body no longer working. after 6 more attacks & multiple hospital stays, i'm still looking for the balance of 'real' life & not letting my diagnosis consume me.
Treatments
- Baclofen Somewhat Helpful
- this worked well for me during a particularly painful episode. i was on so many other drugs at the time (post-hospitalization) i can't comment on it's specific efficacy, though.
- Neurontin Working / Worked
- this works well for my dysaethesia pains & strange sensations. i have to take a very high dose to get any real relief. (1200mg,daily max.)
- Prednisone Somewhat Helpful
- an oral taper of this medication helped a little bit with coming off the IV steroids. i only wish i could avoid steroids all together. YUCK!
- Provigil Not Working
- this stuff made me feel AWFUL; so, so, so ill. i felt like a zombie, & there was no escape from the feeling. sure i was awake, but i'd have rather been asleep from to be away from the nausea & body aches.
- Tysabri Too Soon to Tell
- the best so far: no sickness, pain or self injections. i don't mind the IV; but i am a little afraid for the future since the data is so limited on this drug. my neurologist is impressed & feels it's really working.
- Avonex Not Working
- this did not work for me. i had relapses despite all my betainterferon therapies Avonex was my first try. i was sick as all get out in so much pain in the days following my injection.
- Rebif Not Working
- as far as selfinjections go this one was the easiest most comfortable. being subcutaneous it came with an injector that hid the whole putting a needle in myself thing. unfortunately it raised my liver enzymes dangerously i am still dealing with that today despite being off the therapy.
- Solumedrol Working / Worked
- this is my last resort drug. when i am absolutely in the clutches of an exacerbation i generally get a 35 day course twice daily via IV. the side effects aftermath are horrendous both physically mentally for me emotionally for my family. when it comes to motor dysfunction this is the therapy my dr. comes to.
