Humira on it's way
June 22, 2008 3:46pm
Not wrote recently so updating all that has happened. Recieved call from pharmacist on Monday, i will be getting Humira in 2 weeks!! I am so happy i …
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madferrit’s Profile
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About Me
I'm a 29 year old mother of two wonderful boys aged 7 and 10 and a wife of a brilliant loving and VERY understanding sympathetic husband 8 yrs of marriage and 14 yrs all together i'm so suprised he hasn't run a mile........... i havent been in work for a good few years due to my illness so i read ALOT to keep my brain active. i love to keep fit but again it has suffered due to Crohn's.I'm a pretty upbeat person and try to look on the bright side but i do get down now and then so thats why i'm here to meet people like me or maybe not!! I hate to think my family has suffered due to my illness but they have and so i have i, i feel like i miss out on so much fun stuff but i won't stop trying to beat this!
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Journal
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still no word from doc!
June 13, 2008 3:33pm
oh how annoying and frustrating is this waiting about? I was promised a phonecall on monday but i still havent heard a thing and i called them and …
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Nausea
June 8, 2008 12:59pm
spent yesterday in bed again. This time was not only tired but plagued with nausea, it was so bad i had bucket next to bed all day!! I only managed …
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WOO HOO!
June 5, 2008 10:23am
Just recieved phonecall from my Doc, i've been approved for Humira and they will be phoning me on Monday to confirm a date when i can be trialled …
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Hugbook
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hope you got a check-up! i thought you were in the clear since you hadn't been on in so long. good to see your icon even though you aren't feeling well.
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Hey sweetie!! I'm sorry you are feeling yucky right now. Are you still on the Humira?? Sorry I haven't been on in a bit. My hubby just bought me my very own pink laptop for our 6 year anny so I should be on more now
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Madferrit, Thanks for the great comment... made me smile. In the meantime, I've been moving from Long Beach to Buena Park (California). So I've been kinda busy with that... and yes, in the 'love department' I have found someone new... and things are going so well... seems 'unreal'.. .I hope this continues to be good for both of us. Take care! - Nick
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Hi there. Have you tried remicade? It's starting to help me. I'm feeling about 50% better. still have occasional pains & trips to the bathroom. I am really watching what I eat cause when I'm at my worst it's horrible. I hope you feel better soon. Hugs. Susan
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Hope you are feeling better. Is humira working for you? I hope it is giving you some relief. Susan
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Support Groups
Close Crohn's Disease & Ulcerative Colitis
i suffer with Crohn's disease and have for 6 years. i haven't had a remission since 2 years ago which only lasted 2 months! i've been in hospital several times, had iron unfusions, blood transfusions,central line with steriod IV , TPN due to life threatening low levels of albumin severe pain, diaorhea, vomiting not responding to the usual drugs and now i have sever joint pains , psoriasis and have developed alopecia!! the list keeps getting longer and i'm due for an op in september
Treatments
- Azathioprine Not Working
- Only managed to take it for a month and it nearly killed me! Was unable to walk eat understand where i was and what was happening-very scary!
- Prednisone Somewhat Helpful
- Have been on steroids for 4 years now and never managed to come off them although they aren't always successful in helping with flareups
- Remicade Not Working
- Had to stop infusions due to massive allergic reaction mhile recieving infusion. Did help the first 2 times though
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