sunshinechild's Journal

We have Gotten the genetics test results back confirming what I already thought.  My 4 1/2 y.o.  daughter does have NF1.  She continues to get more cafe au laits.  We just went to the ortho dr. her knees are bowed, and one leg is slightly longer than the other.  I pray that as each day goes on if she does encounter another obstacle from NF that I am aware of it right away.  My husband also has been tested, but we are still waiting for his results.   I believe that they will be positive for NF also.  

 I still haven't discussed things with my 11 year old daughter who does not have NF.  I keep waiting for the right time to talk to her about it.   I don't think I am going to go much in to detail with my 4yo, she knows she has cool spots! 

I pray that other people with NF have Strength, Love, and  the Support that they need to deal with whatever it is that they have to deal with,  whether it be a small bump or a large tumor etc.,  God Bless

Donna   

I am tired all the time, and I am getting frustrated!  I know I have to get my thyroid levels checked agian.  I am too tired to go!  I do everything that I have to do, then I have no energy for myself!  I feel like I am on a roller coaster, and I hate roller coasters, I want to get off!   I hate feeling this way, and I just want to feel normal.   I pray God will give me a kick in the butt or something to get me motivated!  

My morning started out with black ants in my room, my daughers room and the kitchen!!  I brought my daughter to school and came home  to spend the next 2 hrs running up and down the stairs, and from room to room killing black ants   uuuuugggggg!   I have sprayed all baseboards and cracks and crevices, I hope we can get them under control.  Well I better go I think we are going to have a bad thunderstorm, what next?...........