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  • Image of sunshinechild

    About Me

    I am a mom with two kids, 11 and 4, I work part time and I have been married to my husband for 15yrs. My 4yo daughter has NF1, Cafe' au lait spots, slightly larger than normal head, and she is a litle short for her age. Right now that is all she has and I pray for strength and encouragement as each day brings the unknown. My older daughter has no signs of NF1. I am also a Christian, struggeling to stay focused on the right things. My family is everthing to me. I am also kind of a perfectionist that is always wondering if I am doing the right thing about every situation that comes up.

    Interests

    Reading to my girls. Watching my older daughter excel in sports and academics. Playing outside with my family. reading the bible. trying to get to the gym. :) lol

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Tired

      Mood June 6, 2008 9:43pm

      I am tired all the time, and I am getting frustrated!  I know I have to get my thyroid levels checked agian.  I am too tired to go!  I …

    • Obstacles

      Mood May 27, 2008 1:58pm

      My morning started out with black ants in my room, my daughers room and the kitchen!!  I brought my daughter to school and came home  to …

    • Thankful!!

      Mood May 19, 2008 10:17am

      I just want to say I am happy to have found this website!  I have gotten advise and encouragement that I don't get at home, so this place is …
    • Went to genetic counseler

      Mood May 9, 2008 10:55am

      We went to the genetic counseler with my daughter.  They did a DNA test to see if she has the NF gene.  Results will be in around 5-8wks …

    • Uncertain

      Mood May 1, 2008 11:13am

      I am o.k. today, but I feel like I am getting blue.  I have to shake these feelings of sadness.  I have to start thinking positive and not …

    Read Journal

  • Hugbook

    Give sunshinechild a hug

    • Hug

      From kjl1951 June 19

      big, bigger and biggest hugs

    • Prayer

      From kjl1951 June 12

      4 U

    • Hug

      From ABrow June 8

      writing in the journal is good. i got burned bad today... not looking forward to tomorrow. but im here if you wanna chat. hope tongiht gets better for you!

    • Hug

      From ABrow June 7

      =] thank you. my mom was an alcoholic too. i believe it aided to her death. but i dont think it was the cause of it. but it would have been if you gave it more time. its an evil disease. how are you today??

    • Hug

      From KristiKat June 6

      Welcome to DS! I hope you will find comfort and strength here. I wish you luck and hope you find peace in your situation. YOU ARE NOT ALONE! >^..^< KristiKat {{HUGS!!}}

    Read Hugbook

  • Support Groups

    • Close Neurofibromatosis

      My 4yo daughter has NF1 and I ws looking for others who are going through the same things.

    • Close Stress Management

      I have 2 girls 4yo and 11yo.I work part time 2nd shift. I cherish my girls. Been married to my husband 15 years.

    • Open Families & Friends Of Addicts

      I grew up with my mom being an alchoholic, she died at 55yo in 2001.

    • Open Hypothyroidism

      I have Hashimoto's Throiditis

      Treatments

      Synthroid Somewhat Helpful
      I still feel tired alot
  • Groups

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