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Journal Entry for May 17, 2008 Mood
Saturday, May 17, 2008 | A Frustrating story

I get so frustrated with myself, my last journal was so positive, I was on top of the world and even tho I am very grateful for being alive, I still can't get over the nasty days...its like someone turns a light switch on and off in my head...yesterday I had road rage all day long whether I was driving or not! It was just one of those days, and I really tried to get a grip...I was so angry and I know its a part of this process...how can it not be? I saw my family doctor and she was so nice this time, it was a pleasant visit, then I had to have some meds filled and of course the wonderful medicaid paid for all of it but one and I thought that since I was still on the sliding fee scale (as a back up, or so I thought it makes sense to me) that it would pick up the script that medicaid didn't! Well Hell No it will not, even tho that scale is based on our income...I can only use medicaid! Then why have the "sliding fee"? Well anyways, I couldn't get the Zyrtec filled, medicaid will only pay for the claritin and that shit doesn't work!! My allergies are running high with all this rain we have been having I can't get over this asthma flare...its brought on by all the dampness...UUUGGGGHHH!

 

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So I am still on the steroid's, inhalers, nebulizer, and now she put me on advair which I have taken before and it gave me thrush and a hoarse voice for 6 weeks, but she swears by it, so I am trying it again...Of course I rinse my mouth out very well, so we shall see...its just a nuisance, I know I am complaining, but I can..... then of course the nasty leg cramps are back, so I bought some bananas for the potasium, hopefully it works cuz these cramps are horrible! I found that when they start in the middle of the night to grab my calf and squeeze and put my foot flat on the floor and they actually stop, so that is a good thing, as long as it works! That to me is the worst pain, OMG! Then the fibro has been acting up, I went 3 weeks pain free, besides my hips and it was so nice....I have decided so far that all those painful injections in my hips weren't worth it..I still have pain and the injection sites itch like hell and still hurt..it feels like a constant very mild muscle cramps in my thighs and hips....I won't be doing that again anytime soon. He told me that I would feel the full effects of the drugs in about 2 weeks, well its been just over a week and not a difference...they still hurt and ache! I go to the spine clinic on monday, I am praying for some relief....I hope they can help me, the pain and numbness is awful! I am just falling apart! Then I start physical therapy on tuesday, but I am sure that will be put on hold since my surgery is coming up and I don't think I will feel like going to PT once radiation starts....I will probably have to have another referral to continue and my doctor is all for that....I am so glad that she is taking the approach she is taking...I guess its worth all the hassles of going to that dam clinic if someone actually pays attention to my pain and anquishes....my family doc told me yesterday that I am in real pain, I have real problems and she will help me anyway she can no matter what it takes, she will make things happen for me...AMEN sister!!!

 

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Mom and I are going to plant some pretty flowers in my yard today, its cool out but sunny and my yard is just too GREEN...I have things growing all over, but I am a colorful lady and I need more COLOR....so we are going to add this and that, nothing too expensive but somethings that are pretty and give my house and yard some character...I am actually looking forward to planting...I am not usually a "yards" person, but since I have my own beautiful home, well its just natural to want to make it pretty....simple but pretty...I have a huge yard and many trees so there isn't many full sun places, but that is ok, cuz the flowers I love the most require part shade!!! I am in the process of cleaning the yard up, you know the burning of limbs, leaves and all that stuff...I can't seem to get my husband to want to do anything except work on his truck, even his garage is a total nightmare but he is just too flippin lazy to do anything that requires work! It really makes me mad, we are suppose to take PRIDE in what we have, its a hard and lonely road doing it alone...yes I even burn the stuff up with my asthma! when it gets too hard to breath, I just throw on a mask....one day I will be alone again...OMG how I can't wait for that day....why bother with a husband who is so self centered? Even in my cancer journey, he isn't all that supportive, he still thinks about HIS aches and pains...he doesn't talk to me about anything and its all the same, we fight and argue all the time, so why do it? Its coming to the end of a long and painful marriage, it all takes time to put things in place....I am basically waiting for my SSD to get here...(when I win it of course) and move on...I long to live in a different state, we are moving to Georgia eventually....It looks like it will be just mom and I and our brood of hairy 4 legged creatures...but I am ok with that...I am really ok with that!!!!

 

Well you all have a wonderful relaxing weekend and I will post another time...MUAH to all my wonderful friends!!!!!

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Comments

  1. Glot

    I sure hope that you got some of those pretty flowers planted like your Mother and you want to do. Never can have enough flowers around the yard to enjoy during the summer days. Hope that the sunshine is shining your way. Take Care and have a neato nice day dear friend. Hugs and prayers Gloria


    Glot

  2. centenniel

    Hello ... Yes, your story does sound very frustrating, but I understand and feel the sadness. I just wish I could drop by and have lunch or coffee with you. By any chance have you read any of Dr. Laura's books on the care of marriages and husbands? I haven't but they are on my "to do" lists. I hear they are quite helpful as her books are filled with great compassion and wisdom. Whatever you and your husband decide, may you have no regrets, and may you both find the strength to part in dignity and grace. In closing, I'm awfully glad that you have your mother there with you, your pets, your house and yard for all the peace, happiness and blessings they bring us. I hope you have a pleasant weekend and a good and productive upcoming week. ... Your friend, Lynne


    centenniel

  3. MEGNEEDSABABY

    i'm sorry about all the aches and pains. i'm praying for you, i really wish God would take away ALL your pains. i'm sorry. =[ take it easy and try not to let J get to you. love you girl. P.S. i'm waiting for you in GA.


    MEGNEEDSABABY

  4. Rocky7

    shelley ,im sorry you have to put up with the incompetance of a dr who cant give you a decent medication for all your allergies ,my daughter ,who has cf ,has lots of problems with them too ,especially in this heat wave ,suddely thrust upon an unsuspecting uk!!!
    she has/had astham to ,so can only take certain meds to ease it ,and yes ,they are never covered by her incapacity relief either!
    at least thank goodness ,you have an understanding gp ,who acknowledges and understands the pain you are in ,and is doing everything in her power to help you!yey!for decent female drs ,who listen!!!
    I know it must be frustrating for you ,to be on top of the mountain one minute and climbing up fighting the obstacles the next.but you will have these days ,just let all ur feelings out ,come yell here ,we will listen ,and maybe it`ll help some??
    well ,im so glad you have your mum with you ,it always makes things seem better with our mums beside us.Im sure once you both tackle your yard ,it will look a wonderful sight ,with lots of colour and beautiful smells!!(my favourite is our cherry blossom ,which doesnt just look pretty ,it fills the side of the house with an amazing aroma ,and has transformed the once bare path ,into an archway of beauty.
    will sure try your pinch to relieve cramps ,i get dreadful ones at night ,along with awful burning aching pains in my heels ,not sure if its fibro or not!I tend to blame it all on menopause!well ,its wreaked havoc on my body ,so why not?!lol
    love and hugs my friend ,hope tomorrow will be a better ,brighter day for you ,talk 2 u soon ,much love ,sharon xxxxxxxxxxxxx


    Rocky7

  5. SheShe

    I sure am glad I got a good husband - I am afraid I would have kicked one like yours out years ago or shot him.. LOL I hear so many friends talking about their husbands not understanding fibro or other health issues and it just grinds my behind - wives are always there to take care of their men - well most of them are, my son's ex wife was never there because it was only about her, she sounds like a twin to your husband, but geesh when you get married one of the vows are for better of for worse and in sickness and in health.. duh I think it said sickness, does the hubby forget the vows?? Well I hope you know your not alone, you have all of us here at DS and we love and care about you.. Take care sweetie, love and hugs for now.. Sheila


    SheShe

  6. aloneagain

    Sweetie, take pics of your pretty flowers when they bloom. I hope you get the asthma worked out soon. I'm sorry I haven't been around, I've been on the phone alot, but you already knew that(lol). I love you girl and I support you good days and bad bc you do the same for me. Muah!!!!!!


    aloneagain

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