The nagging thoughts are creeping …
The nagging thoughts are creeping back in slowly but surely.....but I'm doing my best to fight them off. …
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WELL, i'm feeling a little relief but i can't help but feel some frustration... this is my third child and it's strange my other children are completely fine... and this one.. perfect pregnancy, and then BOOM... the delivery and everything is changed.... i mean ... i did everything that i was supposed to do .. the prenatal appointments , the vitamins, eating right, etc.... how did this baby get this ?... and is there anyone out there who can help me.. i hope that i can talk to some parents who have children of nystagmus.. and i hope that i can meet and talk with adults who live with this everyday and i hope that i can be rested assured that my baby with grow up to be a productive adult with a wonderful quality of life....
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Hi! Welcome to DS! I have spoken to adults with this and they say they can see and things dont move back and forth like you would think! My son went to the doctor abou the eyes shaking and we found out that he also has OCULAR ALBINISM and would be considered "legally Blind" I started him with vision therapy right away! I notice at times he will tilt his head to see things better and focus. The movement has slowed down over time.I find when he's tired or alot is going on..alot of visual stimulation his eyes move faster. There is a surgery that they can do but I would defintily wait for awhile and start w/therapy. It doesnt take it away it just slowes it down. It is pretty contraversial...I would defintetly do alot of research regaurding the surgery.Hope this helps. Beckie
blessedbaby
hi, i am also a mother with a child who has nystagmus. i have only just found out about 2 weeks ago. the Ophthalmologist did not explain very much to me about this condition but she did say my daughters eyes move from side to side. she also has very strong glasses as she is long sighted due to having this. i have done some research on it but t would be better for me to actually have other peoples experience n mind. i would love to chat to parents who can advise me on what i can do to help my child.
samh1985