Still feeling pretty good....a …
Still feeling pretty good....a couple of joint pains but nothing as severe as it has been before.Still not …
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So Back in february I caught the flu and was out of work for about 1 week. A week later I got phnemonia(sp?) and missed another few days of work,(all on my personal vacation time). I told my boss through all this I thought I was having a crohn's flare and that it may be an issue cuz of the conditions of crohn's which I had to explain to him). Then I got the flu again, ended up in the hospital where they began treating my flare as well as my flu. Unfortunately the docs there didn't have a clue and discharged me 3 days later. 2 days later I was back in the hospital for an extended stay of 3 weeks where they tried to control my symptoms. I kept tellling them that there was something else going on, but noone seemed to want to hear it, so essentially they did nothing for me and discharged me with the same severe symptoms of pain, diarhea, vomiting and general acheness and swelling. During this period I changed my gastroenterologist to the one that was treating me in the hospital, because they were closer to where I live and I thought it would be easier. Boy was I wrong! Easier is not always better. In follow up appts with these new gi docs, I found out that they idn't prescibe pain meds or a anxiety med that I need when I take prednisone because it makes me a little (or a lot) crazy. Therefore, I had to run aroung to my primary doc to get these meds and he was not comfortable prescribing them so I had to call my insurance case manager(who has been a life saver when it comes ro getting things done with the docs), to call them and demand that they write these scripts. Meanwhile, my medical situation is rapidly deteriorating, because they are tapering me off the predisone too quickly and the asacol i am taking is not absorbing, so its coming out whole if you know what I mean. I call them to express my concerns and get this they up the dosage of asacol, so now I am just relieving 9 pills a day instead of 6, what a joke, and they didn't seem to care that my symptoms had increased and that I thought it was from the rapid tapering of prednisone. So I call my old doc, who is an hour away, which is why I switched, to have a phone consult, or second opinion if you will. He gives me somethings to bring up and I call the new GI back and tell them I spoke with my old doc and these are some suggestions he gave. Now here is the kicker, They tell me that they think I should go back to my old doctor because I am a difficult case, but that they would be happy to see me when I am better. I GOT DUMPED BY A DOCTOR!!!! Seriously. Anyway, I made an appt to see my old doc and low and behold within 10 minutes of seeing him, he says stop taking the asacol since its coming out whole anyway, there is no benefit. He also says that he thinks there is something else going on besides my crohns. I should also mention at this point that I had been having severe respitory problems and also suffer from asthma. So he sets me up with a lung specialist, and sends me for a nuclear test of my gallbladder. I see the lung specialists within a few days and they telll me my asthma is going crazy, probably due to the crohns flare and start me on a new maitenance med (yeah I can breather), I go for the gallbladder test and find out that my gallbladder is severely diseased and needs to come out. Now as sick as I have been for the last 3 months, I wonder why noone thought of doing other tests, they seemed to only focus on my crohns and other preexisting conditions (ovarian cysts). It took my old doctor 10 minutes to discover the root of why I am not getting better. What a ridiculous ordeal! The other issue on the table is that I am on temp disability from work and if I am not back on the job by the 20th of May they can post my position. I feel like sueing these docs because I couls have been back at work 2 months ago had they even considered checking another source of my illness. I have lost so much dyring this process, my bank account has dwindled to nothing because disability only pays about 1/4 of what I normally make, my relationship has suffered and we have even considered splitting up, I have been depressed and withdrawn and felt like I was the crazy one. I guess now I am just rambling but it feels so good to get it out. I havea pre-op appt on May 12th and hopefully this dibilitating journey will be over soon.
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Feeling like a MAC truck hit me. Hard. stupid joints. pain. ugh. Tired, can't sleep. This stupid Asacol makes …
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I am so sorry to here about the problems youhave been having. The hospital and dotors should have found the problems with your gallbladder. I recently had the same issue, but not as servere. the er doctors diagniosed me within 3 hours and had me in a room quickly with lots of pain meds. I have learned that u should try to stick with the same doctors and especially the same hospital. Aso meds can drive you crazy so hang in there. Overall, i am glad to see that your in good hands now, so you will feel better soon. P.s. I am 40 and single so i better not give you relationship advice, but i hope it works out well....rob
mrrobteach
Heather ... wow. There are so many issues in your post about which I could do a little rambling myself! I'll refrain but don't you feel compelled to apologize. I'm thinking that is why we are all here ... to ramble and even rant and rave when we need to and to be there for others when they need to. So you feel free!
I do wish you well. Please keep us up to date on how you are doing.
MERF