Journal Entry for July 6, 2008
July 6, 2008 8:35pm
XYREM IS AWESOME!
Progress
70 %
Goal End Date is Jun 1, 08 55 days ago.
pkarmstrong’s Profile
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pkarmstrong
is feeling Excellent
About Me
I am a graphic designer/artist. I have just recently been DX'ed with narcolepsy, very mild sleep apnea and RLS. I am not sure how to cope with all of this yet. I am here to learn all I can about my sleep problems so i can try to live a better life. My symptoms have progressivly gotten worse over the last 2 years but i knew that something wasn't right as far back as 14yrs old. The thing was everyone just thought that it was normal for a teenager to sleep a lot in my house hold so they left me alone. It wasn't until i got married for the 2nd time that my husband told me what i was doing was not normal. I do not have cataplexy (yet) basically i have EDS but my tests showed REM sleep in under 3 min on 2 of my naps. Just recently i have been having attacks where i would sleep for 36 hours straight. So this is why my husband insisted that I see a dr. The dr told me that my body is simply just sleep deprived because I have severe fragmented sleep(another symptom of narc) Also falling asleep behind the wheel in the morning is scary! So I am determined to get all of this under control. Who knows? I might actually get to see what it feels like to feel good one day.
Interests
anything art, and now i am very intersted in the human brain because of my DX.
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Recent Activity
July 6
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pkarmstrong wrote a journal entry updating their control my narcolepsy goal 8:35pm
XYREM IS AWESOME!…
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pkarmstrong changed their mood to Excellent 8:34pm
January 26
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pkarmstrong turned 32 12:00am
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Journal
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good news?
April 30, 2008 11:59am
For a change, i have good news! the ritalin seems to be working great! woohoo!!!!
I am not having any serious side effects and no hung over …
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Hugbook
Good Luck
Hope your doing well!
Flower
you seem to know so much!! My doctors are usless and i dont know anyone else who has this problem. I feel normal but normal wouldnt be going to bed at every opportunity and bed time still being 7pm lol. this is my first visit here i dont know what i want to know just feels good to know im not alone. Its the cataplexy thats the worse bit for me. I dont actually fall over just feel like i will and have to stop laughing. im rambling cos its good to talk to someone who has similar things goin on sorry but had to get that all out lol
Hug
Thank you so much. I really am at one of the lowest points in my life at the moment. I feel like I'm having a breakdown I just can't handle anything at the moment, and think I'm gonna get sacked from work today. I'm so reliant on this group at the moment as you are the only people in my life who understand this, I have logged in here at 3.45am with tears streaming down my face and your hug has given me the first reason to smile in days, weeks in fact, may god bless you x
Hug
just noticed that my husband (robere) recommended the same book i just left you a post about on your discussion page. i agree with him 100%. hang in there-do the best you can!
Hug
please read my profile
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Photos
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Goals
Progress
5 %
Goal End Date is Jul 20, 08 6 days ago.Current Weight (Lbs)144 -
Support Groups
Close Narcolepsy
just recently Dx'ed with narcolepsy. not sure how to deal with this yet.
Treatments
- Eat Less Too Soon to Tell
- sometimes i notice if i eat too much i get more tired. this will also of course help with my weight loss goal.
- Provigil Not Working
- making me sicker than i felt before
- Ritalin Working / Worked
- I have just today (4/28/08) have been put on this drug, it seems to work very well today, but we will see how it helps in the future. It also works for short term so I feel like I have to get everything done before it wears off! :)
- Xyrem Working / Worked
- this seems to be the answer to my EDS. Somedays I have times of tiredness but it goes away. This is the best I have felt in a long, long time. I still don't feel like I am there yet, but am doing much better.
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Groups
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Snapshot
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