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I got the all clear!!!
I had to wait almost 2 months for the results of my ct scan and I'm glad I did not waste my summer dwelling on it. The doctor told me that everything was fine. I also got more good news that my white count was finally normal at a lovely 5000. I had already told my husband, even before these results, that I though my levels were probably back to normal because my energy level was so much better these last few weeks than they had been all year. Like the veil had been lifted.
MY doctor ordered yet another ct scan for the end of October. I feel like I just got over this one. Oh well, he's the expert, right?
This time last year was when I knew for sure my first line of treatment didn't work, because of this I was feeling quite anxious. Kind of felt alittle like post traumatic stress. I was even having trouble sleeping again. Hopefully, I'll be able to sleep a little better tonight.
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I'm a little nervous
I have been having a great summer and have beent trying as best as I can to not think about all that I have been through this year. Until yesterday I was even able to put the results of my latest ct scan out of my thoughts but tomorrow is reality day. I have an appointment with my doctors at Rush and I'm sure they will finally give me a copy of the results. The scan was so long ago though, they could have changed by now. I am staying under the assumption that all is well,
It will be nice to see it on paper with my own eyes though.
Right now I am starting to get a sore throat, perfect timing, maybe I can get the doctor to give me something for that while I am out there.
I'll let you all know what they say.
Wish me luck
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Good luck. :)
Summers are so busy but I am loving it.
Well, I had my CT scan on Monday and I have absolutely no idea when I will get the results. It's funny that during active treatments I was able to find out any result at almost any time but now I seem to have to wait like everyone else. I am hoping that no news is good news at this point.
I have been having a ton of fun these lasy few weeks. Two weeks ago a my hubby, 2 of my sisters and their husbands took a short trip to Las Vegas and had an amazing time. I lost $10. I know, I have a huge gambling problem...lol. This holiday weekend we took a couple days to vacation in our own city (Chicago) with some friends. Ate too much, drank too much, and stayed out way too late but it was so much fun. On Sunday, I am leaving again, I am going to Lake Tahoe to meet up with one of my best friends for a week. I am really looking forward to this because for 1.. I have never been there and 2.. I have not seen my friend in well over a year, so we should have lots of laughs.
The best part about all this is that I could have never imagined myself being able to do all this just a few short months ago.
I still have those test reults in the back of my mind but I am definitely not going to let it ruin my summer.
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Yay for summer! I think us "northerners" really appreciate the warmer weather. Enjoy Tahoe! I hear it's fabulous. Continue to whoop it up, girl!
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Don't worry about the CT scan. I have a feeling the results will be good news and another milestone will be passed.
Tahoe is beautiful, especially at this time of the year. I think it's elevation and location means you won't have to deal with any smoke from the northern California fires and it should be a grand trip.
Not much new to report here. No word on alternatives and no additional doctor visits. Just reading on alternatives myself but there seems to be little in acknowledged medical circles on refractory hodgkin's lymphoma. Basically we've covered the primary, secondary, and tertiary treatments without luck and there doesn't seem to be anything on the horizon. :/
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Oh sweetie, just reading about how much fun your having makes my heart giggle and flutter!! Doesn't it feel so good to be enjoying your life this way!! I know I marvel at all the things I do these days and it just makes my heart want to sing w/ joy.
I think back to those dark and dreary days with my husband so sick at home, completely convinced I was infected with HIV, and just no end in sight, days when I couldn't even imagine myself breathing one week later but here I am, and here YOU are!! Life is amazing isn't it...the twists and turns that it can take but it's all so worth it. You are a-mazing!! And I'm so proud of you. I think your CT scan will be just fine.
Oh and u really must take care of that gambling problem you know. It could get ugly!
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it sounds like u r having an amazing summer!!!!! i am glad u r doing so well! i pray things continue to go well and god bless!
Past Entries
The first year of remission is constant testing to make sure that things don't come back unannounced. :) Doesn't mean you're in danger.
I'm glad you've got the all clear. :D
KevinH
A big fat crazy WOOO HOOOis in order! Enjoy the rest of the summer, what's left of it anyway. Those lovely, crisp fall days are just around the corner. Maybe you should schedule your CT for Oct 31 and wear some nutty anti-cancer costume.
CarrieAnn
There is absolutely NO excuse for having to wait two months for CT results. I know you dread the outcome every time you have to have the tests, but for your own peace of mind, they need to let you know before two months that you are fine!! Insist that they be on the ball!! So happy for you. At this point they will most likely want scans every 4-6 months but it's good that they stay on top of the situation. Again..........congratulations
junebug
Hurrah! I'm so happy for you! Hearing that you are well on the path of putting this behind you brings hope to the rest of us as well. Just try and keep positive and think of the scans as just continual confirmation that you've won! *HUGS!!*
Ceryswi
Hey beautiful girl! Congratultions on your clean bill of health!! I am so happy for you but even more so, I am so proud of you for living your life, not letting this hold you back and not letting it ruin your summer. Good things do come to those who wait. I hear you on the upcoming one, but just think about it as reassurance and preventive measure more than anything. You will be fine. OMG I'm over the moon happy for you. You are such an inspiration you have handled t his with such grace. Much love and happiness for you.
anewstart